There is no cure for Lupus.
Imagine as I tried to explain that fact to my kids as I took my first round of medication to fight the disorder.
It keeps the Lupus quiet in my body.
You mean it puts it in a cage! Mom, put that Lupus in a cage and show it who is boss!
I’m a Lupus wrangler, according to my children…and I plan on living up to that image.
It’s hard some days. The disorder is currently being a jerk to my liver. Which means a step up in treatment and a lack of dirty martini’s for Mommy. Sigh. But that’s ok…because we’re fighting to keep Lupus in it’s cage.
Help us.
Yeehaw! (Did I say that correctly, here in Boston all we wrangle for are parking spaces:) Erin, you pack my strength of spirit in your tiny body than any person I’ve ever seen!
I’ve donated & hope that all your readers will do the same, providing the funds needed to give you and other stricken with this horrid illness the golden lasso you need to wrangle this monster down for good!
.-= geekbabe´s last blog ..Are my reviews really worth less than 10 =-.
Hang in there Erin. Whenever someone mentions “uncurable” diseases all I can think is “as yet…”
Remember that we live in a world of medical “miracles” and the more people become aware of a condition, the more research is done on it.
Wrangle that Lupus, lady.
As my daughter said to me a couple of weeks ago, “you have a disease, but you aren’t just that, it’s just a small part of who you are mommy.”
I know it seems overwhelming right now hon (always does in the first couple of months after a diagnosis) but it’s just a small part of your life – not who you are. (((hug)))
If anyone can wrangle it, you can! Yeeehaw!
It occurs to me that this cage metaphor might help my son deal with his peanut allergy, which is also a (currently) incurable condition caused by his own damned immune system.
Faulty immune systems need to get themselves the hell in line. I am really tired of their misbehavior.
.-= Jaelithe´s last blog ..Seeds =-.
I have been following your story. A friend of mine was diagnosed with Lupus around the same time you were. I wanted to let you know that I have another friend who has been living with Lupus for more than 20 years, and in the beginning her organs were under seige, too. She has a full life, works more than a full-time job, and has found ways to take care of herself. Hang in there, you have a lot of people who care about you.
I too know someone who’s been living with Lupus for years and leads a very full life. And as Dawn said, if anyone can put Lupus in a cage, it’s you.
I, too, have Lupus and have had it for many years. Right now I am off medication but have been on tons of it to control the beast. I, too, have had many surgeries. It is so important to have a great doctor. Good luck to you…..
My 18 years old niece has been diagnosed with lupus. we all are shattered. tell us how we can tame lupus so that my niece who is very close to my heart can live a healthy and long and happy life
I remember facing a diagnosis of L-words many years ago (lupus, leukemia, …???). Turns out, mine never did get a name but I’m still fighting to keep it in its cage.
If anyone can keep lupus caged, you will — indeed! Yeehaw!
.-= Tara´s last blog ..waiting – a boy and his dog =-.
Well I see you have cowgirled up over there!
My ex has lupus and I will tell you that story sometime offline!
.-= Liz´s last blog ..Free in the sea! =-.
I was diagnosed with lupus in 1996. Since then I have battled infertility, had three kids, done a number of high pressure jobs and been involved in a number of research trials. My lupus is pretty firmly caged. Each year since I was diagnosed has seen developments in treatments and there are new drugs coming on stream all the time. Lupus is no longer what it once was. Wishing you the best.