I’m going to die like Elvis.
That’s how this is all going to go down. So to speak.
I’m finally peeking my head up here on my blog after a week of being ‘sick’ – which is different from my usual ‘sick’ where in I just take all my medications and trudge through life hoping things get better with every lab test. This week we decided to add ‘gastro’ issues where phrases we haven’t used since the kids were in diapers like ‘Aww, she made it through the night without pooping her pants!’ were busted out.
Oh don’t look at me like that, you’ve read this blog before. You are not shocked or surprised I went there.
So I’m now on day EIGHT of said issues and I have another round of IVIG treatment going in me as I type (one-handed). I’m just glad I made it. I’ve been sleeping in the bathroom for over a week so you just never know what state they’ll find me in come morning.
All kidding aside, this is just one more of those things someone with a chronic illness has to deal with. You see, we don’t even get sick like a normal person. Nope. It’s just not that easy. If you have an auto-immune disorder, like I do, you get the same colds and flues as everyone else, but you get nailed.
That is, if what we’re dealing with here is viral. The doctors think it might be. But, that’s another story. (helllllo it started with my increased chemo shot).
But back to my point: as a family with kids you can imagine the germs that go around this house. Which means when someone gets the sniffles, I get pneumonia. When someone gets a 24-hour stomach bug, I get an eight days and counting ‘bug’ that will probably land me in the hospital on bowel rest…I’m just guessing.
To say that I’m frustrated is probably an understatement but I’m trying to keep it in check. We had just gotten word from the doctor that my labs were starting to improve. I was just getting comfortable with the idea of my limitations, and finding ways to work around those limitations. Sure I had been put back on daily steroids, but I had also been given permission to diet. I actually had TWO WEEKS OFF between treatment rounds and was really excited about it…until halfway through I was stricken by what we’ll call the Elvis disease.
The scarier scenario that I am doing my best to ignore – this is my body’s reaction to the increased methotrexate injection and in order to keep my inflammation down I need this dosage.
Hmmmmm, inflammation that gives me strokes, TIAs, kidney issues, liver issues, and potential continued organ loss and horrible, constant pain OR horrible and uncontrollable diarrhea and vomiting.
What to choose…what to choose…tough decisions.
Yup, I think going out like Elvis is my best bet.
He is a legend, after all. And the King.