Frustration doesn’t really even begin to describe how I feel right now.
I’m somewhere between wanting to train for a marathon and give up to just not be in pain anymore.
Don’t read into that. It doesn’t mean anything more than it says. Pain sucks.
I’m beyond unhappy with my body and beyond unhappy with having been back in the hospital and going through another round of treatment and having the flu in the house and Republicans all up in my vagina.
I feel like I’m a burden …again. I feel like I am no good to anyone around here and their lives suck because of me and all the things I can’t give them or can’t do.
I look like some 200lbs version of myself that I hate more than I hate … I don’t know… more than I hate the Colorado Avalanche.
That’s a lot of hate.
But that is the honest truth of life with Lupus. And tomorrow I may wake up feeling fine and the kids better and I will smile and be thankful for a great day with my family. It’s that simple and that complex.
I want to blog more, and write and push all my words onto the page but I don’t want to scare anyone. I want to sleep and rest more, and gain strength and get healthy and mount the biggest comeback the world has ever seen.
But more than anything, I just want to be. Making those around me happy and content. Making those around me unafraid and without worry.
I want to be able to take care of my family- simple things like making lunches and driving back and forth to school. Cooking dinner. Doing the dishes. Daily activities, as the doctor calls them.
I don’t think that is too much to ask.
So that is where I plan to concentrate my efforts and my energy: those around me. They need it. I need it. We all need it- with some space to breath and grow.
The good news is all of my current medical issues appear to be medication related. The bad news is all of my current medical issues appear to be medication related. This balancing act continues. But I have no doubt we’ll get to a place where it feels like home.
That is all I ask for. It is all I want. And I will get what I want.
Recent Comments