Living in Awesometown

I am sure it will come as a surprise to absolutely no one that I’d love to run for public office some day. It was always on the bucket list but life threw some curve balls at me that didn’t exactly fit into my career plans and well…here we are.

Recently a school board position became unexpectedly open and I briefly considered throwing my hat in the ring. Briefly because once sanity hit, and the usual pain I wake up with, along with my grueling treatment schedule and basically just juggling trying to stay alive…the husband and I figured maybe this wasn’t the best time to add the stress of trying to care for the educational welfare of the valley’s kids.

1st day of school 2013

I also had to think about the type of person I would want on the school board and currently *I* didn’t fit my own criteria. I wasn’t attending meetings due to my health, I wasn’t interacting with as many school administrators as I’d like, nor was I up to speed as much as I’d like on the budget or ‘common core’ or new building concerns. Sure, I was way ahead of the average parent, but that wasn’t and isn’t good enough.

Granted I’d been reading everything I could get my hands on, even old meeting notes from years and years ago. Yet still, I knew I wasn’t ready. I expect a lot of our elected officials. Which brings me to another issue I had trouble with- this would be an appointment, not an election. Something that also didn’t sit right with me.

I also had this nagging feeling that while I was being as partisan as possible since becoming disabled, I had very little right to throw myself into a position that required as much nonpartisanship as one could muster while maintaining their sense of self.

For those who are unaware I spent my early career completely nonpartisan as a traditional journalist. No one would have ever have known how I felt, voted, or leaned on any given story I ever anchored, reported, or wrote. Six Golden Mics testify to that fact and I am very proud of them.

When I left that world for blogging, I had a hard time transitioning and went from screaming my opinion to whispering it to finally finding my voice.

As it turns out, I found it just in time to stifle it again in order to take the helm of running 2008 election coverage which required me to work with both side of the aisle and every candidate on the Presidential ticket. That required me to build bridges with the RNC and the beyond which resulted in, what I am very proud to say, was stellar coverage that went far beyond election day and into the health care battle where I worked to connect women bloggers with legislators intimately. If you wanted to ask then Speaker Pelosi a question, I made that happen. If you wanted to talk to Congresswoman McMorris Rodgers, I made that happen. That was my job and I was damn good at it- and damn good at making sure that same balance of voices-left, right, center-were heard on the site as well. Do you have any idea how hard it was to manage those who shall remain name-less (but feel free to go look them up) who went on to write for Breitbart, Huffington Post, Townhall, etc. all on in one political section? I should have gotten hazard pay…and I’ll leave it at that.

So as I sat thinking about running for a nonpartisan position, I just couldn’t help but think, ethically, now wasn’t the time. Nope. I’d have to spend more time working on getting through this Affordable Care Act battle, the many LGBT battles, including the current one in our schools that thankfully the Governor took action and signed into law, among many other things before I was ready to take on a position that required me to represent a district with some diversity. I say ‘some’ because let’s face it, the Santa Clarita Valley still has a ways to go when it comes to the whole ‘white flight’ bedroom community. We’re getting better. The demo is changing. But we’re not exactly there yet. And I have too many important battles I believe need my voice on this side right now, where I am making a difference.

Now of course I would run on an agenda, and that agenda would lean left. However I firmly believe that once you are elected you are representing everyone in your district. It’s one of the things I admire most about President Obama, and one of the things that drives me the most insane about him. I wish he’d only govern with Progressives in mind, but he doesn’t. He governs with the entire country in mind. Something I would hope to do if ever elected to office. Do his policies lean left? Yes. But does he make an effort to bring everyone to the table and even include solutions from the other side…always. (And as I see conservative heads exploding as they read that…I will give you one example just to get you going: that mandate you hate so much in Obamacare? It was compromise starting point from the President to make conservatives happy because it came directly from the Heritage Foundation and Romneycare. It was the HERITAGE MANDATE, just saying…)

So where is all this going you’re wondering? Well I’ve been meddling on Facebook in some local groups. Mostly because I was following some local reporters and some friends, which lead me to mingling with local elected officials.

Currently the President of the Hart District is Joe Messina. He actually has a right-wing, radio talk show in which he regularly features people like Brad Dacus of the Pacific Justice Institute (labeled a hate group by the Southern Poverty Law Center) and apparently this week he’s talking to Newt Gingrich’s wife. I can’t make this stuff up. And I can’t imagine what a student who even slightly pays attention to the board must think.

I bet the LGBT students of the Hart district must really get all warm and fuzzy when they read the President’s blog and it says (and for context- he’s speaking about a study he fails to link to claiming adolescence lasts longer and for argument’s sake pretending he agrees with the findings), “Why do we let, 7, 9, or 15 year olds decide they are gay, lesbian, or transgender? How do they make that kind of life-altering decision when their brain, according to the experts, isn’t capable of making that decision yet…If “children” ages 18 through 25 do not have sufficient brain development to make career decisions and live independently, how can children younger than that make life-altering decisions regarding sexual orientation and abortion? I doubt there’s enough “science” to explain that one to me!”

The President. Of our school board. This is what he does when he’s not looking out for my kids…he’s on the air acting like he’s the next Rush or Beck and railing against bathrooms being accessed by transgendered youth and he writes things like:

“…A New Hampshire high school graduate and boot camp graduate was barred from wearing his Marine Corps uniform in lieu of the traditional cap and gown. The young man had worked hard to make sure he had his credits done in time to leave early to go to boot camp, pass boot camp and get back for graduation. The school board, in my opinion, made a terrible mistake not allowing him to do so. No reward for his hard work. However, if he was a transvestite, would they have allowed him to dress as a woman, wear the female gown, wig, high heels, and so on? I have seen some graduations where the rainbow colors were worn as a scarf or the gown itself. And this is Equality? How?…It seems that equality is what some people (usually those on the political left) deem it to be and everyone else can, well, go pound sand!”

So you can imagine Messina and I don’t exactly see eye to eye on…well… anything. Awhile back I attempted to meet with him over tea and coffee to discuss the divisiveness I saw coming from his role as a pundit and board President and attempted to offer solutions. He was cordial. I was cordial. I made him promise to think of ALL the kids in his district when moving forward, he agreed.

Months later, I not only feel were my solutions entirely ignored but I now feel they are openly mocked. But he’s a white, Christian, Republican in a Buck McKeon town…he knows he has the advantage. Plus, everyone talks about how they just love him. Yup, they say…oh no matter what hateful rhetoric he spews on his daily show he’s such a nice guy and he really votes in the best interests of our kids, Erin! I mean, we can forgive him for being so passionate about what he believes because he gives so much time and energy on the board to the kids.

Yup. All for the kids. Please, take a look at his radio show’s Facebook page too. It’s ok, it’s all for the kids and he’s really a nice guy. Notice it has a No Bullying sign on the top. The irony, it burns.

As a parent in the district and as a someone looking to be healthy enough to one day run for office I just couldn’t let go a recent back and forth where he also took to Facebook to write things about me that are not true. Now, I get into political debates with people all over the web all the time. You have all seen me do this on twitter, on facebook, on my blog…but I can’t say I’ve ever gotten into it with the President of my local school board who then went on to lie about me.

Messina said, and I quote: “Erin – We can do this all day, you find one, ill find one, and so on.. Your rant about how Atheists are smarter than people of faith left out a lot about the ONE article you looked at and how the ATHEISTS who wrote it came to that conclusion. Yup you would make a good trustee with your very open, fair and warm support of all people.”

Now let me make something clear here. There is no ‘rant’ by me about how atheists are smarter than people of faith.

There is a facebook post in where I post a study and I ask the question if the study is ‘junk science’ and a debate takes places, by and large without me as I was dealing with two kids home from school that day. Feel free to read and take a look.

At any point in that thread do I pass any judgement on atheists or religious folk? Do I rant? Do I draw any conclusions other than to lean towards it being junk science?

That is, IF that is what Mr. Messina is referring to…because he then, oddly, accuses me of yet another lie: “…Your blog shows you believe that people of faith have a lower IQ than those who don’t, does that mean you have pity on the kids in school that believe in God? Should they have “SPECIAL” classes to help them out, Why? or Why not?…”

I asked Messina to show me where not only this so called ‘rant’ took place but to also please show me where I have ever said anything like this on my blog or ANY blog I have EVER written for, and I gave him a list from MOMOcrats to BlogHer and beyond. Just in case he wasn’t familiar with all the place I write on the web.

No answer as of yet on the Facebook thread. I have screen shots of the entire conversation which includes much, much more… like the President of the Hart School Board’s solution to the transgender bathroom issue being to put pictures of genitalia on the bathroom/locker room doors and if you match the genitalia, that is where you should enter. When I protested that this would ‘out’ the student his response was “ERIN – Outs the student, doesnt the STUDENT get OUTED when his PENIS is hanging out in the girls locker room.. Try Again!”

…and I’m the one sarcastically being told I would make such a good trustee with my very open, fair and warm support of all people.

Maybe he’s right though and the sarcasm is warranted. Because I really don’t have an open or fair mind when it comes to bullies. A sad point to have to bring up for someone in charge of leading our children. Also for someone who is ‘buddies’ with the aforementioned Dacus who has launched an all out campaign against anti-bullying programs.*

Luckily I won’t be bullied into giving up my aspirations for running for office and certainly not by someone who lies about me. I mean seriously, there are ENOUGH real and totally worthy POLICY issues we disagree on that he could have his pick from, why make something up?

There is no making sense of the senseless, I guess.

I do, however, expect more from the President of my local school board. Back up your claims about me or apologize for lying, retract your statements, and move on. My body may not be ready for a campaign but my mind is already in the fight. And I won’t be the victim of a pre-emptive strike by someone who attacks me with lies simply because he doesn’t like my politics. I don’t like your politics, Mr. Messina, but I’m certainly not going to lie about you to locals in the hopes of what? Turns votes my way in the event we ever run against each other? Sorry, I don’t play that dirty political game.

Luckily the politics in Santa Clarita Valley are changing and I will be less alone as a progressive looking out for everyone in the Valley, not just the status quo.

*I would also like to note all of my claims are backed up with linked sources, something Mr. Messina has yet to do on his blog posts or his facebook posts. 

An Open Letter to Judge Judy Sheindlin

Your Honor,

I just watched your interview on Fox News which aired on October 11, 2013. You also mentioned you don’t read negative mail, so my guess is you may never see this…however my hope is that many will be educated regardless.

First of all my love goes out to your daughter-in-law with Lupus. As you rightly stated, some days I’m sure she can get out of bed and go about her day and others it’s debilitating.

Debilitating was the word you used, not me.

Then you went on to say how (and I’m paraphrasing) we’ve created a society where drug addicts and those with bad backs and those like your daughter-in-law are told ‘not to worry, if you can’t take of yourself we’ll take care of you.’

Apparently in the world of personal responsibility and your new book that you are shilling, you think the government shouldn’t be helping those with debilitating auto-immune disorders. Ones they didn’t ask for, nor did they contract by some irresponsible action of their own.

As someone with a family member with Lupus I would hope that you would be better educated on exactly how it works, but by the way you spoke on television I was unclear. Especially considering you seemed to think Lupus was not a disorder that could possibly render one disabled to the point of needing government assistance. This may be the case for your daughter-in-law. It may be the case for many others with Lupus in varying degrees. However, Lupus is a killer and as you said, debilitating.

It destroys organs.

It causes organ failure.

It causes strokes.

It attacks your own body and causes so much pain you can not get out of bed, shampoo your own hair, or even tie your own shoes.

But here is the real kicker: Lupus is different for everyone. It does not attack one body the same way, because hey…we are all different.

From the Lupus Foundation of America:

Lupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints, and/or organs inside the body). Chronic means that the signs and symptoms tend to last longer than six weeks and often for many years.

In lupus, something goes wrong with your immune system, which is the part of the body that fights off viruses, bacteria, and germs (“foreign invaders,” like the flu). Normally our immune system produces proteins called antibodies that protect the body from these invaders. Autoimmune means your immune system cannot tell the difference between these foreign invaders and your body’s healthy tissues (“auto” means “self”) and creates autoantibodies that attack and destroy healthy tissue. These autoantibodies cause inflammation, pain, and damage in various parts of the body.

In my own body, Lupus is currently attacking my blood vessels causing them to be inflamed. As you can imagine this causes much pain from head to toe. We also just found out I have the beginning stages of glaucoma thanks to Lupus. Previously Lupus has caused me to have a stroke, two TIAs, lose my gallbladder, lose part of my colon, lose my uterus, my ovaries, and my cervix.

I undergo bi-weekly treatment via IV infusions three days a week, for 4-6 hours per day. Those are on the weeks I’m just getting my ‘regular’ treatment. Every four months or so I get two extra treatments of a super powerful drug via another IV infusion.

I am on powerful steroids and many other medications that have serious side effects. Some days I’m not sure which is worse, the disorder or the treatment.

As you can imagine, this doesn’t exactly make it easy to work. Which is why I am thankful that in our country, when I was capable of working, I paid into social security as well as private insurance disability benefits. I thought that was also called personal responsibility. According to you, though, I’m avoiding personal responsibility.

I worked as hard as I could for as long as I could, making sure we had savings, and even reaching out to family for help. Then medical debt took over and now we’re doing what many Americans do: paying our bills, living paycheck to paycheck, and thanking all the deities for Obamacare (which as you correctly noted is law) as it will help my family get through this rough time. As someone who makes millions per year and was named to Forbe’s list of highest paid entertainers, I don’t expect you to understand the needs to the average American family. I do, however, expect you to retain compassion regardless of the size of your bank account.

Now I’m not exactly sure why you felt the need to single out Lupus patients as being irresponsible for their disability simply because they follow the law and take out the money they put into these government programs. Lupus patients are already stigmatized enough as it is with so little money having been put into research and educating the public on the pain and suffering we experience.

Our pain is real. Our suffering is real. You are welcome to see my brain MRI showing the stroke, the doctor’s notes and files regarding the inflammation so pervasive in my pelvis the doctor couldn’t believe anything was left and most of all, I’d love for you to talk to my family. Please, sit down with my children, my husband and hear from them the toll it’s taken.

Just as you don’t want to ‘pay for my kids’ I certainly do not want to be sick and out of work. It’s the LAST place anyone with Lupus wishes to be. Shame on you for insinuating we are mere moochers or freeloaders not taking responsibility for ourselves.

I’d give anything to be back at work and healthy. I’d give anything to have my organs inside my body and my brain functioning as it was before the stroke. Lupus is no joke and those with Lupus deserve your praise, not your scorn. We wake up every morning and fight to live. We fight against the odds. I know Lupus patients who are heroes.

As someone who is sworn to uphold the law perhaps you have seen only the law breakers from your bench. Perhaps you have spent so many years handing down sentences to those who try and take advantage of the law that you have forgotten the majority of people are not looking to lie, cheat, and steal their way through life.

Some are just simply hoping to live.

I’m glad there is a safety net for citizens of this great country and I believe we are a great country because we can provide that safety net. You may not like your tax dollars going to me or my family, but I don’t like my tax dollars going to wars I don’t agree with. It is a give and take. I, for one, am much happier giving to those in need.

And let me be clear: those with Lupus may truly be in need. The next time I can’t get out of bed, I will think of you and how you said I was undeserving. The next time yet another doctor gives me yet another diagnosis (last week it was glaucoma) caused by Lupus I will think of you, and how you said I was undeserving. The next time I’m in the hospital by doctor’s orders even though I want nothing more than to go home and be with my family, I will think of you and how you said I was undeserving.

Please educate yourself further on Lupus and perhaps offer your daughter-in-law even more help on those bad days when she can’t manage. Because we hope you never know the pain she and I are feeling on those days and how we’d love nothing more than to be at work instead.

In the meantime, I will proudly collect the disability I worked hard to contribute to and I will proudly stand up for Lupus patients – all 1.5 million of us in the US alone – as they collect their checks as well. Because as you said  ‘not to worry, if you can’t take of yourself we’ll take care of you.’

I don’t want Lupus patients to worry and I WILL help take care of them. THAT is the mark of an incredible nation that puts its people first.

Sincerely,

 

Erin Kotecki Vest

There is a Move On Petition asking Judge Judy to apologize for her remarks regarding Lupus. 

 

There’s a Bounty on My Head in Washington DC

How much do these people hate me to continue this shut down?

That’s what I keep thinking as Democrats and Republicans continue to squabble over what was supposed to be the budget, but really came down to how much they hate me.

Yes. Me.

I benefit from Obamacare already. As someone who is chronically ill with one of those nasty pre existing conditions, I need those lifetime caps lifted and I need to know I can get insurance if something were to happen to the insurance we have now.

But others out there seem to think that not only do I NOT need these things, they are so sure of it and so angry about it and so worked up over all of us getting insurance they’ve waged war and shut down the government in protest.

They are calling it a government slimdown. You know, showing us all the things we can truly live without if we’d only work a little harder and try.

My da

And all I can think is man…they really hate me. They really, truly, hate me. They hate people like me who are signing up for coverage as I type this. Buying insurance for their families or their small businesses so they no longer have to worry about cutting their pills in half to make them last longer. So they no longer have to go to the ER for that cough that they never treated because they didn’t have a regular doctor and that cough turned into a fever and that fever into pneumonia.

They hate us because we want insurance. Affordable insurance that we purchase ourselves. Sure, some of us might get some help from the government in buying that insurance if we need it, and some of us might not, but at least we can’t be turned away because we have Lupus or cancer or because one of our kids has asthma or allergies.

They hate us so much they even call us names. Just this week I was called a Welfare Queen, a bitch who sucks the government tit, and I was called the reason our great nation is drowning in debt.

Never mind I currently don’t take any government assistance. I do have a hearing next week with Social Security disability. They’ve denied me and my private insurance disability has provided attorneys to fight with an appeal. Why? My guess is the private insurance doesn’t want to pay my disability, they would much rather Social Security foot the bill. It’s part of my contract with the private insurance that they take on this fight for me so I don’t have much choice in the matter. But I digress.

I’m hated because I was a functioning, contributing member of society who got sick. Very sick. I did what any normal American would do…went to doctors, got many tests performed on me, and paid all the bills that came our way from every doctor and every lab and every hospital. Yes, we have insurance. Good insurance. But you see, the bills…they keep coming.

Soon the savings was gone. Then we had to start using credit cards to pay the bills. Then we had to talk to family for help. Then we talked to the bank. Then we talked the government and the bank about the HAMP mortgage re-fi program for people like us who had never been late on a payment but were worried we might be because of all the medical bills that still have not stopped.

We did what those men in suits reciting Dr. Seuss expected us to do, we took responsibility for ourselves. We continued to pay our bills. We STILL pay our bills, but again, they keep coming. That’s the tricky part about getting sick nowadays. You can prepare and prepare and prepare just like you are supposed to, but one major illness and financial ruin is no longer something that happens to someone else. The bills don’t ever stop, and your income goes DOWN not up.

But they don’t care if I’m sick and undergoing treatment. They don’t care if we continue to pay our bills while taking advantage of the provisions in Obamacare and shopping the exchanges to see if we can’t find a way to lower our costs. No…they hate me, and everyone like me.

Have cancer? They hate you. Manage to get in a car wreck? Oh they hate you too. To them you are nothing but a freeloader. A moocher. Someone who, apparently, should have had the MILLIONS they have stashed away for when they get in that fender bender that throws out their back and makes it impossible for them to work.

So I sit and wonder why they hate us so much. I realize we argue over the big issues like abortion and same-sex marriage. But is that enough to leave me without coverage? Without protection? Without doctors and medicine?

In essence: are our political differences enough that you would leave others to die?

I think the past two weeks have given us the answer.

Yes. Yes they would leave you to die. Survival of the fittest is their motto and we don’t fit the bill.

Of course, many in their own families don’t fit the bill but they will tell you they planned better.

Of course, many in their own families suffer with illnesses like we do but they will tell you they changed their lives and made sacrifices and worked harder than we did. Which means they deserve to live, and we do not.

No, I’m not sure why they can’t see that not everyone can plan as they can. Not everyone has millions and not everyone can dig their way out of medical debit and not everyone has family to fall back on and not everyone has anyone for support.

But that’s not their problem. In fact, they’d like you to simply go away. Head to ‘your closest church’ is what I was told, and there I would find ‘whatever I needed.’ Today I was at my closest church for my daughter’s basketball game. Out of curiosity I asked what was available for a family in a situation like ours.

I was told they had a lost and found we could go through and winter coats should be coming in soon.

That’s not exactly the blood plasma and chemo I use to keep me going.

Perhaps they don’t realize that most of the chronically ill can’t drive. They rely on things like Meals on Wheels and WIC, but those that hate us were too busy shutting down those programs while making sure WWII Vets could look at a memorial. Never mind that Mom can’t get out of bed because her pills have run out and she would take her youngest to preschool but the local Head Start program is also shut down, because those types of kids don’t really need an education anyway, right?

That’s how much they hate us.

Which brings me back to wondering why. What is it that makes them hate us so much they would push our government to the brink of default, push 800-thousand of us out of work and call it ‘fat trimming,’ ignore every economist on earth screaming what will happen globally if the US defaults, but more importantly what will happens to their OWN PEOPLE. Social Security checks. Small business loans. Veteran benefits. Clinical trials of drugs that may SAVE LIVES.

Why do they hate me so much? Why do they hate you so much? Why do they want us to die? Why don’t they care?

Is it money? They say money is the root of all evil…so is it money? Is there a sinister plan that nets them millions once this is all over?

Are we worth millions in cash to them? Millions of suffering or even dead Americans = millions in cash.

I know I don’t agree politically with those on the right. I know I can argue like hell to get my point across. But never, EVER, would I wish them ill. Would I wish them the hell I am going through. Would I wish them dead. And never would I VOTE to show them just how much I want them out of my life. I would never vote to demand their services, that in some cases sustain their lives, be terminated.

I don’t know why they want me dead, but there seems to be a bounty on my head in DC and I thank the President and the Democrats for fighting for my right to live.

Can Anyone Save The House GOP?

You saved us. 

That’s what my son told White House staff gathered around the table as he sat on my lap.

No really, you saved us.

My son, who hadn’t said a word for nearly the entire meeting, even though he had confided in me he really wanted to tell them all about how his Mom has Lupus and how great it was they were helping more people get treatment and medicine and see doctors.

Thank you for saving us.

My son, sitting on my lap in the West Wing, his little sister by his side. Both having devoured packages of White House m&m’s just minutes prior, had the entire room welling up with just those words.

It is all I can think of now as I watch the news and I see these men and women who call themselves representatives of the people. All I can think of is my son, in his suit bought just for the occasion, driving home the importance of Obamacare in a way only the innocence of a chid can.

And this guy always a chip off the old Daddy block

The Affordable Care Act is a law passed by Congress, signed by the President, held up by the Supreme Court, and even fought over during the 2012 election where President Obama, once again, came out on top. Yet still, these men and women who call themselves patriots have rather unpatriotically brought the fight back up again, refusing to accept their defeat and refusing to understand that right now people can go to HealthCare.gov and enroll in an insurance plan.

They shut down the government yet stopped nothing.

Right now I’m looking at my husband’s paycheck to see exactly what gets taken out to pay for my astronomical medical care and I’m comparison shopping at HealthCare.gov - considering our family’s options and what is best for us. There is an Anthem Blue Cross plan that pays 90/10 instead of the current 80/20 we have with Aetna. There is a HealthNet plan that covers my very expensive treatments with copays instead of the huge deductible I pay every January now. Lots of things to look over and consider that potentially could save us even more money.

I say even more money because ObamaCare has already brought us help. People don’t understand the benefits yet, and that’s really what this fight is all about. You’ve seen my bills. I’ve tweeted them time and time again and explained how our family has used ACA already. But what about you? Sally Kohn wrote a great piece for you- Five Reasons Why Americans Already Love ObamaCare. Did you know those things?

Listen, you may not like that 48 million Americans now have access to health care. You may not like that they can shop and insurance companies can compete for their business. You many not like that President Obama has done something amazing and it WILL be life-changing for those like me with chronic illnesses. Except we’re the lucky ones. So many are like me in disorder only.

My family has the luxury of comparison shopping on the exchanges while others have no insurance and don’t even make enough to pay for the meds the ER doc prescribed the last time they got so bad they broke down and went to the hospital. Now they CAN- based on their income they can go to HealthCare.gov and enroll now and it might be FREE or under $100.

That changes everything and those Republicans in the House know it…they KNOW IT.

It’s just a shame they don’t care. 

Perhaps if they were in a room with my family, sitting around a big office table, hearing about how hard it is to live with Lupus and what it does to your life and your kids’ lives…and then to suddenly hear the sincere thanks from a 10-year old child. Perhaps then they might let their hearts grow a bit and take off the attached riders and pass a REAL bill. Not one that tricks Americans into thinking they don’t even NEED health insurance and should just pay the fine. What sort of horrible advice is that? All because they believe this is government run health care? Last I checked Anthem Blue Cross and Aetna and HealthNet weren’t my government. All the government has done is put in place some rules that should have always been there- like the one where they can’t find really stupid reasons to kick you off their policy simply because you are sick and costing them money…we like that one at our house- and put all these companies together in one spot to compete for your business. Sounds pretty damn American to me.

But what’s even more American is a 10-year old boy finding his voice in a room full of adults simply to say thank you because he knew, at that very moment, it was important to express that his family needs ObamaCare and he was grateful to have his Mom.

That’s how the President knows he’s doing the right thing. That’s why he won’t give in and neither will we.

Thank you, Mr. President for saving us and to your staff for staying strong.

As for the House GOP…perhaps a meeting is in order between you all and my son. I’d let my eight-year old daughter tag along but you don’t want her there, trust me. She’s not nearly as sensitive and empathetic as her brother.

She’d just kick your asses.

#allhailhala giving Congress hell in her purple lupus scarf

Of Leeches and Heroes

I get a lot of emails. Especially now that I’ve gone public with my illness and the hardship it has brought on my family.

Some emails lift my spirits in ways I can’t explain. Others who understand how difficult it is to manage a chronic illness and a family, yet keep on laughing

Some emails break my heart. The stories upon stories of just what getting sick can do to one household. It is why I fight so hard for Obamacare. It is why I make sure I scream from the rooftops that those of us who need things like assurances that our pre-existing conditions won’t be taken into account when we apply for insurance are heard.

Because it’s not a joke when we say it really is a matter of life and death. It is not rhetoric. 

We worked hard to turn the Affordable Care Act into law. No, it’s not perfect. It is a start. We will NOT turn back. The current debate in Congress over Food Stamps? We’re not turning back there either, because in case you haven’t noticed…many of us who have gotten sick now need help due to the absolute disaster of a healthcare system we have in this country. We are drowning in medical debt at my house and we have great insurance.

This is just one of the many emails, just one of the many stories. This is your neighbor, your friend, your family.

Read what was sent to me below and then go to HealthCare.Gov to learn more.

You will not DEFUND ME. You will not DEFUND US.

-Erin

I Am a Leech

by Anonymous 

I may have an auto-immune disease. I am a woman. I am also poor. My insurance is supplied by the state. I have five children – they are also using state funded insurance. I get food stamps. According to the GOP, I and my family are leeches.

Let me tell you a little something about living as a leech.

For years I worked as a nurse aide, then after an injury at work I began working as a freelance writer and blogger. My husband worked in the rental industry and worked other jobs. His last job involved leaving home before six in the morning and getting back after eleven in the evening. I was pregnant with our first son. We did not have a lot. We made due, like everyone else. Our oldest daughter has autism and we worked to place her in the best programs possible.

My husband was injured on the job while working in the rental industry, but he kept working until jobs began to dry up during the Great Recession. I kept writing, bringing in extra to try to make those ends meet. He worked with a friend painting homes, then one day he came home with his injured knee swollen and something bulging from the side. That was the end of being able to walk without pain or swelling for him.

I took on as much work as possible. Trying to make ends meet when clients want to pay you one dollar for five hundred words? That burns you out. Non-paying clients, low paying clients, and then advertisements that end up being a spam scam? Yeah.

For years we made due with very little. We refused to ask for food stamps, no matter how low the pantry was. He and I went without eating to ensure the children always ate. One day I began falling ill with mysterious symptoms. The day I couldn’t lift my fingers to type was the day I went to the emergency room. The doctor there told me she believed I could have Lupus.

At the time I had no insurance. No primary doctor to fall back on. No tests to go for. Nothing. We saved our tax return and moved out of the city, I hoped living in the country would help my symptoms and give my children a better place to grow. After almost a year we decided we would need to apply for at least Medicaid and food stamps (SNAP). We qualified.

Let me tell you, if you think that SNAP recipients are just handed a huge amount, you’re wrong. We qualified for $450 a month. That is for seven people. We utilize meals plans, careful shopping, and coupons in order to make it last. This leeching family spends more time ensuring that our benefits are well spent than most people ever imagined. Processed food? No thank you. Our meals are made from scratch. If my children eat cookies and cinnamon rolls, they’re homemade.

It bothers me to accept assistance. Even though I’ve paid taxes and should be thankful for this safety net. It bothers me to the point that I hide my EBT card in a way that it cannot be seen when paying for food. Even though our cart is full of nutritious food for our children. Because no matter what you do, you’re bad when buying with food stamps.

Don’t believe me? Look at arguments online. If a food stamp user spends money on ‘junk’, they’re bad. Anything that is considered sugary or processed is wrong. But wait, if you spend your benefits on natural, healthy foods like fruit and vegetables, you’re still shoving your benefits in people’s faces by buying what they can’t or won’t. Honest – I could buy nothing but flour, sugar, vegetables, and everything else to make meals from scratch but the moment someone saw the one six pack of Pepsi in my cart? I’m a Food Stamp Queen.

What does my health have to do with this? Well, we applied because I was having a hard time writing. Heck, I was having a hard time walking from my bedroom to the kitchen for morning coffee. I was in severe pain. Imagine your bones burning. Literally burning away inside of you. Your muscles weak and shaking from the sheer exhaustion just getting out of bed caused. Typos all over your articles because lifting your fingers was too much.

That’s why we have these ‘benefits’. I’m smiling as I write the word benefit because, really, there are people that believe there is a benefit to being sick and poor. The reality is that when you have state insurance your doctor runs only the basic tests. If those tests show nothing severe, you’re not sick. You’re sent home and told to take some ibuprofen and cut your stress levels. Have a knee with severe dislocation and torn, deteriorated cartilage? Bone worn down until the grinding is audible to anyone listening?

Go home and take some ibuprofen.

This is my benefit. This is my husband’s benefit. Being stared at as if we are criminals, made to feel ashamed for making sure our children are fed. Not allowed more extensive tests to help us get better so we can get off of the system. To top that off, because we stooped to ask for help, there are many that would deny us the right to health care at all. Thanks to ObamaCare we can have the most basic of care, but there are those that would deny us this. Why? Because the sick and poor do not deserve to exist. My benefits do not pay my bills fully, because of this my propane company is pocketing a big $87 a month that they refuse to put toward out back bill and won’t deliver anything else until all $1800 is paid. This is after paying them faithfully every month for a year – they misquoted us on the full amount, but it’s still our problem.

We don’t have a car, social services refuses to help with transportation, even though that’s the law. Shortage of funds in our county. The bus route in our rural area was cut, so that’s out of the question. Without transportation to social service mandated tests or reporting, we will be ‘sanctioned’. Even with all of these so-called ‘benefits’ we are worse off than before. We can’t afford to pull out of the system but we can’t afford to stay in it. The stress from it causes my symptoms to rear their ugly head and that causes more stress until I can’t work.

Every time my body decides to flare up symptoms, some part of my body is being attacked. It is being damaged. Without the tests and care to determine the cause, the damage progresses. Without medication to control this, I will die early. My family will be left without a mother. A mother that loves them enough to work through the pain, the exhaustion, and to bite back her pride enough to apply for assistance. My husband will still be disabled and without me, he will need to find a way to supply their needs, even if that means being a prisoner of the system. Being shamed for swallowing his own pride.

We are sick. We are poor. We are leeches. Yet still, we fight. We fight to find work. To keep our family above water. We will continue to do so until our bodies are broken. Why? Because that is what an American does. Regardless of your party – you fight to survive. If that means asking for help when you’re broken, so be it.

I am a leech. But, I will live until I die whether anyone likes it or not.

Today is That Day

Today is one of those days you have a hard time explaining the world to your children.

Today is will always remember two men who didn’t ask questions, didn’t blink…but did their jobs for me when I called on them and asked. Even though they were in grave danger and ended up running for their lives. Yet there they were, doing what they do best in the midst of the chaos and informing the world of what they saw.

Those two men will forever have my admiration. They both choose to remember today in their own way and for every year that has passed I’ve never tried to push a celebration of their lives or shower them with public accolades. I’m just forever glad they are alive and forever glad they tolerated my calls during the horror.

Today is also the day I, somewhat like the Grinch, had a body part grow three sizes that day. Except it was my spine. Never again did I just do what I was told. Or take an assignment and go where I was told. Upon reflection of the day’s events I should have said no to sitting below the two tallest buildings in Los Angeles, awaiting their destruction so I could report from the middle of it…if I survived.

Today is the day I turned my career from a young reporter, to an investigative reporter to be reckoned with in one of the largest cities in our nation. I’m proud to have forced the city to spend millions to shore up security at our ports and our local water supply and proud to have the awards and special momento (given to my news director) as a reminder. May that lock  sit on her desk forever.

Today changed so many lives forever, not all are as kind as mine. Today I am grateful to still have so many of you in my life who nearly were gone forever and my heart still aches for those lost.

Today is the day I use up a lot of my wishes, the same as I did so many years ago.

Lunchtime love

Trayvon’s Heart Missing for White, Mom Jury

I think we need to talk about the other elephant in the room regarding the Trayvon Martin case:

this jury of predominantly white “Moms”- or so I keep hearing.

As if, magically, this will take away any issues of race or privilege or any other issues…simply because all these jurors were mothers and female.

I’ll just go ahead and say it and take the heat: some of the biggest people with racial issues I know are white feminists. Mind you I did not say every, I did not say ALL, I said some. Simply…some.

I found out first hand when I was the first blogger to publicly ask former Secretary of State Hillary Clinton to step down from her run so then Senator Barack Obama could claim the nomination for President. 99% of my hate mail came from white feminists who were shocked and appalled I dared ask a woman to get out-of-the-way for a man. They accused me of being at traitor to my gender. They accused me of being a N-gger lover, out to “impress” the “other” minorities, while ignoring my own. They also told me women needed this more than people of color and I should know that because I AM a woman. How dare I fail to understand their struggle and how dare I put those of color’s struggle above women’s struggles?

So when I heard the jury was made up of a bevy of white females, I did not feel any better for the prosecution’s chances. Even if they were liberal, white, females. I knew all too well the history of racism some of these women carried in their hearts and I knew some believed their plight was far worse than any other minority’s plight. I also knew, deep down, some may be harboring some very racist views.

It was the age-old “but our struggle is harder than your struggle” fight that I’ve watched play out over blogs over the years. Even on my own.

But hey, maybe I was way off base. Maybe my gut feeling was totally wrong and these were enlightened, totally biased free women. Sure they might have the usual issues anyone would have with race and gender and class, but perhaps they were smart enough to put all that aside for the trial and move forward like rational humans.

And then came Anderson Cooper’s interview with one of the jurors. My stomach churned and sadly, I felt like my initial thoughts just might be true. I certainly didn’t feel any better about my theory as to the panel composed of George Zimmerman’s peers. Juror B37 said she had no doubt Zimmerman was “afraid” – my question…how afraid can you be if you take your gun and pursue the person you are allegedly afraid of? But what caught my attention most was juror B37′s comments on witness Rachael Jeantel. “A lot of the times she was using phrases I have never heard before and what they meant…that’s way they talk…” (emphasis mine)

Does she means the way teens talk? Doubtful. I think considering she was discussing her “communication skills” she was speaking directly to race. Directly. Go ahead and click on the link to her discussion of Jeantel. How she felt bad for her. How she felt she was uneducated. Really? She was speaking about her being a teen then? Juror B37 sure tried not to say it, but it was clear to me she was speaking about race.

And to Jeantel’s credit, she was respectful of the juror’s comments, even saying her parents helped her calm down and she was raised to not cuss and respect her elders.

Certainly doesn’t sound like someone who was ashamed of herself or her education to me there Juror B37. In fact, Ms. Jeantel out-classed you and showed her education far better than you did on national television.

So where does that leave us? With a generation gap or a racial gap? Or does that just leave us with those who are upset at the verdict and those who are not?

I’ve been told I’m race-baiting by even bringing up black witnesses and white jurors in this case. But an unarmed black teenager was killed, he was considered suspicious for walking through a neighborhood in the rain, carrying candy and tea. SO VERY SUSPICIOUS that George Zimmerman felt it necessary to follow Trayvon with a loaded gun.

I can’t think of any teen or man who wouldn’t confront Zimmerman if they were being followed. And there sits this jury of predominantly white women actually thinking it’s Zimmerman that was scared. The man with the gun. The man who did the following. SO SCARED HE FOLLOWED TRAYVON. If you are scared and afraid for your life, do you chase after the person who you are afraid of? I’m just asking here. And if you are a white woman sitting on that jury -are you the typical stepford-wife thinking Mr. Zimmerman was oh so brave for following that thug of a black boy daring to traipse through their neighborhood?

Nevermind it was Trayvon’s neighborhood too. Because I get the distinct feeling neither George Zimmerman nor the white, female jurors thought of that neighborhood as Trayvon’s either. Even though it was.

Tie in Juror B37′s comments on Ms. Jeantel and I see exactly how this went in their minds. Yes, I am a mind reader. (That’s sarcasm, people…I’m giving you my own theories here, not fact).

And to say race didn’t come into play is either total denial on the jury’s part or just another sad chapter in the long history of white, sometimes very feminist, women denying the plight of people of color in favor of their own struggles.

This isn’t a competition. We are not post-racial and we are not post-gender and we are not post-patriarchy.

Imagine what we could do together if we could only see the other’s fight and help. See the other’s pain and history and empathize instead of compare.

If we could only see the facts surrounding the death of a young man and not let things like our prejudice of a black woman’s “education” get in the way of her account of that fateful night.

And if only Juror B37 could have seen into Trayvon’s heart the way she claims she could see into Zimmerman’s. The man who pulled the trigger. Why is it she knew Zimmerman’s heartfelt intentions yet she couldn’t fathom Trayvon’s intentions and heart? Even after the witnesses and those who told of his unarmed walk home. His entirely legal, unarmed, entirely NON-suspicious walk home. But B37 couldn’t find any heart there…

and I can only come up with one reason why…

Meanwhile THIS white, feminist Mom has nothing but a broken heart for Trayvon and his parents. I can’t imagine their pain. I can’t imagine how they must feel after a jury of women couldn’t find reason under the law to put the killer of their son behind bars. I can not speak to the racism they may feel due to this case or the fallout regarding race sweeping through the nation. I can only speak to what I know. and I know white women. I am a white woman.

Sadly I had hoped they would see into the heart of a young boy before they saw into the heart of a shooter.

We Blend, Trayvon Did Not

My Dad walked into the living room and said “Not guilty.”

I inhaled.

He didn’t have to say anymore. I knew what he was talking about, I knew what he meant. My head swirled.

My 10-year old instinctively clung to my left arm. Began petting me. He didn’t understand. He asked question after question.

But how could he just shoot him and not go to jail? How is that ok? Why would he be not guilty? He shot him. You can’t shoot people, right? 

#relayforlife

I had shielded as much of the Trayvon Martin case as I could from the kids, but my son enjoys watching the news with me and truly enjoys discussing the news with me. So many mornings are spent with the two of us talking over current events. I keep things as age appropriate as possible. With Trayvon it was hard from day one. This was a teenager gunned down for doing nothing more than walking home, being stalked by the local neighborhood watch guy, and when Trayvon confronted George Zimmerman, a fight ensued and Zimmerman shot and killed the teen.

Now Zimmerman walks free and all over my twitter feed under certain hashtags like #tcot and others, people were celebrating. On my Facebook page there were exclamations of ‘What a great day for America!’ and so on.

While my son shook with anger and tears rolled down his face. While my daughter did her best to play her game and not pay attention, yet clearly was listening and upset. While I struggled to come up with the words to tell them justice would prevail…silence permeatited throughout our home.

Silence.

Because there were no words.

There was nothing I could say that would make sense or make this right.

The verdict went against everything we had taught them about our judicial system and it went against everything we taught them about how justice was supposed to be served in the end.

My husband talked about how sometimes, justice does not win. We all did our best to explain away the unexplainable.

But the kids clearly did not understand. Hell, the adults didn’t understand.

Later on in the evening my son asked me how we could make it better. My sweet, sweet baby boy wanted to know what he could do to change the verdict, racism, and the world- and he was very serious.

Again, I had no answer for him. My only answer was that he continue to be a great person. And that hopefully, it would be contagious.

This wasn’t good enough for him.

So I told him about a petition to get the Justice Department to open a civil rights case against George Zimmerman to try, once again, to put him behind bars.

He was unimpressed. And I have to say, while I think the petition and case could be worthwhile…Zimmerman walks free while Trayvon is dead. I see no justice there and I see no reason to get excited over the possibility of another trial.

Something my son said keeps repeating over and over in my mind as I think about the verdict:

Mom, what if I walked to go get Hala some candy and you always drink tea…what if I went to get you tea…and that happened to me? But it wouldn’t though, would it? They think I blend in here, don’t they? They don’t understand I’m not on their side…they don’t understand we’re on the kids like Trayvon’s side. That means I can sneak into their talks and find out what is going on and then I can tell everyone and everyone will be safe. They will never know because I blend in. They will think I am one of them, but really I am like a ninja and I will bring all the information back to everyone like Trayvon and US and everyone will be SAFE forever!

I love my son’s big heart more than I can say. In his 10-year old imagination that’s all it takes. Him acting like a superhero of sorts to come save the day for all. Or at the very least, him acting like a super, secret, spy-ninja who can get rid of racism and the bad guys all in one night.

How I wish this were one of those times his imagination’s amazing ideas worked. And it were all just that simple.

That a 10-year old boy’s dreams and ideas could come true and some of this pain and confusion could be erased with good and innocence.

If nothing else, may the world know if there must be sides to take, my son has signed us up to be on Trayvon’s and people ‘like’ Trayvon’s. That means those of color and those who do not ‘blend’ in ‘our’ neighborhood.

Jack has decided we don’t blend. And I’m glad. I don’t want to blend if it means we are anything like the Zimmermans of the world. We’ll happily be just like Trayvon in spirit.

Forever.