For My Kids

Sometimes you just have to tell your doctor some things are more important than staying away from germs, despite your immune system being entirely compromised.

You can't hear Happy Birthday on the morning of your #9th b-day without a brother squeeze #allhailhala

Sometimes you just have to sit down with your husband and discuss the ramifications for your family if you open your  mouth on an important issue, knowing full well it’s brought death threats and hate to your door before.

Sometimes you just have to say BECAUSE EQUALITY MATTERS – and say it standing up, not in a wheelchair, without your cane, and hope they are paying attention when it is your turn to speak. Because you are standing up in tremendous pain so they can see your face, and you do not want their pity or their prayers. You want them to LISTEN. You spent the day having lifesaving drugs pumped into your body, and you know some of those starting down from their place on high think are a ‘taker’ unworthy of  life because God is certainly punishing you for your wicked ways.

Sometimes you have to cry because any of it is necessary in 2014, two years after a law has gone into effect, that you’re not treated like a second class citizen, that LGBT friends and family are not treated like second class citizens, that STUDENTS are not treated like second class citizens and that your children’s peers are not taught disabled or LGBT American heroes simply do.not.matter. by your local school district.

Sometimes you need to go to a school board meeting and speak your mind.

To be continued… 



  1. Good luck! Your voice is so important. I’m glad you’re using it. xoxo

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