Happy Holidays. May 2011 bring you and yours love and health.
Peace. Joy. Hope.
Eureka
It’s a switch I’ve been waiting to see flip for many years now. The one where I had hoped to see my children understand the other side of the holiday season.
Of course we force them to do the things they don’t want to do. Clean out their toys before Christmas, giving bags upon bags of those toys they hardly ever play with to charity. We remind them over and over again it’s about giving, not getting. It goes on and on and you really feel as though some days you are talking to a wall. They just want the big guy with the white beard and they want him YESTERDAY and they want him to deliver all their toy hopes and dreams.
I remember. I don’t blame them. Hell, I still want Santa to stick a few things under there for me.
Finally though, after what has felt like a lifetime of nagging, something clicked.
I should probably start by explaining that I am very lucky to have two children who truly love each other and play together very well. They are the best of friends, and hurt when the other hurts, cries when the other cries, and laugh and love as if they share the same heart. So when it came time to pick out gifts for each other, they really, really put their minds to work.
My son, ever serious, took days. What are his sister’s favorite things in life? What could he possible get her that would be good enough? How would he make her ‘ooooh and ahhhh’ and say ‘this is what I’ve always been dreaming of’ (his words) when she opened said gift?
My daughter, ever decisive, knew exactly what she wanted without hesitation and demanded I order it right away while she counted the money in her bank to triple check she had enough. She knew how much it cost. She knew where I could find it, and that it was ‘perf-necked’ for her ‘brudda.’ And she, of course, was right.
Their gifts arrived via mail this week, and tonight they wrapped. I’ve not seen them this excited in a long time. And it wasn’t because they were getting something. It was because they were giving.
Eureka.
The littlest was begging to give her brother his gift NOW because she just couldn’t wait. And the oldest was beaming with pride because he truly had picked the most perfect toy for his baby sister.
As I sat wrapping that gift with my son he seemed to finally grasp what I had been trying to tell him.
Mom, I think I am more happy now making Hala happy, than I am when Santa brings me my presents.
Eureka, indeed.
Remembering … or Not
I drove in a circle in our town tonight. The kids in the back of the car, obviously chatting with each other.
I did three u-turns, and twice turned around to go home.
I couldn’t remember where I was going. Or why we were out.
This past weekend my husband headed to a local store for a family Christmas gift purchase.
Upon waking, he told me of his plans and twenty minutes later I asked him why he was getting showered and dressed.
After his shower, as he got on his shoes to go, I asked where he was going. Why was my husband leaving?
As he stood by the door, keys in hand, I looked at him blankly and said ‘wait…where are you going?’
I won’t be driving much unless necessary now. And I have new notepads, pens, and post-it notes to help me remember.
The episodes are short, they are fleeting, and allegedly they will get better. Or worse. We’re not sure.
I just know that I’m crying. I’m scared. And I’ve had enough.
My Birthday Wish
Soldiering on. That’s what my kids are doing here.
They decided, a good few blocks from home, they wanted to build an amazing fort with these discarded palms. I told them they could do whatever they wanted with them provided they carried them home. Not me.
So they trudged. And toiled. And grunted.
And eventually they turned the corner to home.
Elated they threw the palms in our yard and fist-bumped.
Then you know what they did? They quickly and totally forgot all about the fort and sat down to discuss, at great length, how hard they worked to get home.
There are always those that say it’s not the destination, but the journey. I’m starting to understand it a bit better.
My Lupus has flared again. My liver is under attack and infected, enough to where we have to cancel birthday plans and pick up new meds and have me rest. And I’m realizing this roller coaster…this healthy, sick, semi-healthy, semi-sick thing is my life. It will be my life for good now, and I need to stop worrying so much about the destination.
I need to focus on enjoying the journey.
So for my birthday wish, I’d like to be more like my kids. Carefree, excited, and enjoying every part of the journey, even if it’s hard work.
Birthday Wishes: A Love Letter To My Husband
Tomorrow is my husband’s birthday.
Last year at this time I was dragging him to Vegas for an epic birthday party, complete with a suite and lots of booze. It was as if we knew the upcoming year would test us in so many ways and be so hard that we needed to let off some steam.
This year is different though. I will struggle to bake him a cake, as Lupus has made lifting my arms tough. The kids will make him home-made cards, and he’ll attend a work party for something totally unrelated and I’ll wait up for him to get home so I can kiss him goodnight.
Since his birthday last year he has taken the reigns of this household and become a superman of sorts. Juggling kids, work, and a very sick wife.
He’s managed it not just with ease, but with what he likes to call ‘style and grace.’ He has brought me bags to the hospital of mismatched socks, the wrong underwear, and lotion I didn’t even know we had under the cabinet. But damn if he didn’t try to get it right. He’s made sure the kids were properly dressed for school, even if the kindergartener insisted on wearing two different shoes and the 2nd grader refused to have his hair brushed.
He’s cooked us all dinner while playing silly games. Clucked like a chicken at the table to make us all laugh while Mom was in pain. And read, and read, and read out loud to us all as we cuddled in yet another hospital bed.
In this year I have seen many things. I have seen friends step up to aid my family, I have seen others retreat from the fierce reality that was our lives. But more than anything I have seen this man I married, this scruffy, once long-haired, punk rock boy… be the man he is destined to be.
He’s the guy that gives his wife airplane rides.
And then tells her how beautiful she is with an orange spa mask on her face, meant to calm the zits popping up from steroids and too much medication.
He’s the guy that insists we all cluck like chickens at the dinner table, and eyes me mischievously when he announces the Icelandic chicken goes BJORKBJORKBJORK.
He’s the guy that promises to spoon feed me pudding in my invalid-ness and whisper how much he still loves me, no matter what. And then write me this:
I will love you in a house.
And I will love you with a mouse.
And in a box.
And with a fox.
and when your funky.
and when I’m drunky.
If I get nothing else this awful year, if I get nothing else ever in this lifetime… I want my husband to get his wishes and dreams. No one deserves them more. And I am grateful every day for the amazing man by my side. Who I’ve watched come into his own over these past 15 years.
It’s sort of lame to say I’m proud of him…because I’m not sure pride is the right word.
I feel like I am witness to a great man. A good man. A man who values his family, and his friends, and his wife. And lives up to expectations where so many others fail. So many times we are disappointed by people. He’s not one of them. And I can confidently say after a year of hell, he never will be one of them.
So many times he could have easily and rightfully buckled under the pressure that was our year. Not only did he stand tall, but he rocked it. He managed to take care of the kids, the house, his job, and his very sick wife with laughter. Lots and lots of laughter. And love. Lots and lots of love.
When people come to visit our home, many of them leave saying the same thing:
There is a lot of love in that house
And they are right.
And it’s because of him.
Happy Birthday Aaron. My love. My hero. My husband. My Superman. My everything. May this next year bring back booze and parties and fun and even more laughter. And I’ll try to throw in hookers and donkeys and blow…but in the meantime I’ve arranged for you to go skydiving on December 31st, 2010. Because we’re ending this year by defying death.
Fitting.
Jesus Was A Zombie
The following conversation took place between myself and my two children on our way home from school this week. I was driving and singing Christmas songs (something my kids HATE) when I was asked to turn the volume down so we could ‘talk.’
Mom, why do we celebrate Easter?
Well, Easter is a time for renewal. And birth. And babies. And Spring and flowers and everything from winter that was dark and cold, turns to warm and light. So we celebrate the Spring, and in our house, the Easter Bunny- who brings eggs and chocolate and fun! Some other people celebrate Easter because they believe Jesus – remember him?
The Space Ghost guy…
Yes. Well they believe he rose from the dead on Easter.
You mean like a zombie?
Well, no…not exactly.
Because Jesus was nice.
Yes, he was very nice.
So really he was like one of those zombies, but he had a mind control helmet.
And he doesn’t eat brains!
No, he doesn’t eat brains, and I’m pretty sure he didn’t wear a helmet.
So there are nice zombies?
Well no honey, there aren’t really zombies. Remember, zombies are not real.
So Jesus isn’t real either, like you said. Zombies aren’t real and Jesus isn’t real.
Well some people think he’s real, and some don’t.
Well if zombies aren’t real then Jesus can’t be real.
Unless he had the helmet. Because the helmet could be controlled by anyone and that would make him real and like a remote control zombie.
Listen. We can’t talk about Jesus being a remote control zombie with a helmet when we’re not in the car, ok?
Why not?
Because I said so, ok?
You mean like we have to say ‘Gosh’ instead of ‘God’ … you mean like that?
Yes, like that exactly.
I bet you he did eat brains though, all zombies have to eat. Even if they have the mind control helmet.
But nice Jesus Zombies wouldn’t eat brains, they would eat fruit.
But I don’t like fruit Mom. Maybe he likes cheeseburgers instead of brains. Or sushi! Because I love sushi!
But I like fruit, so it’s ok if Jesus likes fruit. And zombies maybe like fruit too, but maybe not. I don’t think they can chew it good because they don’t have many teeth.
Did Jesus have a lot of teeth?
I… yes… no… I don’t know how many teeth Jesus had! Can we just sing more songs?
…sigh.
We’re going to hell.
The ‘C’ Word
I found out today one of the moles on my back went…well, south. Which in the end is not a huge deal except it’s attached to the ‘c’ word that bring fear and dread into most people’s minds.
Especially my children.
Because this mole has already been removed, and treatment for said ‘c’ word will only be another procedure to clean up a few more millimeters of skin around where the mole used to be…my husband and I have decided not to tell the kids Mom has cancer.
Mom has cancer.
Jesus. Could that sound worse?
Sure they will find out someday, but by then visits to the hospital from the entire Spring, Summer, and Fall of Lupus 2010 will be long gone. And they won’t need 300 more rounds of therapy to get over their fear of Mom dying. We won’t order another stuffed toy to commemorate this surgery, nor will we discuss it at length so they understand what will happen before, after, and during.
Nope. This time, we’re staying quiet.
Call me a liar, tell me I’m hiding things from them. I don’t really care. They just do not need to be bothered with this minor annoyance right now, and because we trust the doctor, there is absolutely nothing for them to worry about.
My kids have been through a surgery where no one, not even the doctors knew what they were looking for, a surgery to remove my colon and gall bladder, and a surgery to remove my uterus, ovaries, and cervix, and countless hospital stays in-between emergency and otherwise. They do NOT need to know that in January my back will have a few more stitches that will take all of three minutes with a numbing shot.
They have been through enough. And to hell with anyone who thinks otherwise.
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