Ouch

All I said was “no.”

But the “I DO NOT LOVE YOU, MOM” will ring in my ears forever.

that's her "uh Mom, whatever" look

Watercolors

Watercolors by my 6-year old

Sometimes it’s not the change that throws you for a loop, it’s that you didn’t see it coming in the first place.

I can count the number of times in my life change has blindsided me. When a moment like that occurs, you are never the same and the world around shifts to find a new place.

What was black is white. What was up is down. And so on. And so on.

Most of these moments have for me been in relationships. Maybe because I have terrible intuition or because I don’t pay as close of attention as I should. Maybe because in a relationship, you can’t control the other person.

Maybe just because.

This morning my son’s teacher explained to my husband and I that our 6-year old really enjoys painting.

A rather mundane comment, right? A kid that likes to paint. Big deal.

But it was a big deal to me. Not only had I never seen my son take any interest what so ever in painting, coloring, drawing, even chalk, but whenever I asked him to do any of these tasks he would instinctively shrink away.

As it turns out, he spent a great deal of time on that painting above worrying over colors and fretting over blending. He was upset you can’t see the clouds he made. He was upset he couldn’t make the green MORE green. And he focused his attention on painting this childhood masterpiece so he could take it home to his mom.

And suddenly. Just like that. It all made sense.

This is the boy who, yes, builds robots and takes apart my DVD player and leaves strewn screws and nails all over my floor. But he’s also the boy who turned to me while we were flying across the country to show me how beautiful it was when the sunlight hit the clouds.

This is the boy that told me of how he nearly cried at school yesterday, because the music his teacher was playing was so sad and lovely.

This is the boy that holds my face and says ‘I just want to look at you, because there you are.’

And this is the boy that will now sit, focus, and paint because he has the soul of an artist. A soul I recognize in his father and only slightly in myself. But it’s there indeed, and it blindsided me.

Black is now white. Up is now down. And the world is in a new place.

Starting My New Life As Someone With A “Chronic Illness”

crossposted at BlogHer.com

I bought one of these 7-day pill boxes today…and felt like the oldest 34-year old in history.

Then I came home and proceeded to fill it up, and felt 50 times older.

My life right now

This is my life right now. 12 pills a day, not including those I only take ‘when symptoms’ arise or vitamins.

12 pills every. single. day.

Am I feeling better? Yes. Am I feeling like myself? No.

I’m feeling medicated and a ghost of me. A foggy ghost. After 5 days in the hospital and what felt like 300 tests, the doctors are finally in some agreement as to what’s wrong with my body.

Gastroparesis.
Diverticulosis.
Gall stones.
Severe reflux.

Those are the big ones. There some other little minor things but those are the answers to the million dollar, tubes up both ends of me, nuclear sandwich eating, xray’d until I glowed, questions.

Not cool

So what are we doing for my broken belly? Medication. Tons and tons of medication. They tell me it will be temporary. They tell me I should be popping these pills for 8-12 months. They tell me this all can be fixed. Maybe.

Right now I’m too foggy to care. But at least I have my handy dandy pill holder to remind me. And my brand newly downloaded iPhone pill app. Alarms are set to remind me to take my meds. They go off 4 times a day. They make my life easier but they also make me want to cry.

But I refuse to cry. REFUSE. So instead what do I do? I get this 34-year old body a brand new tattoo and I threw a kegger at my house. I’m also plotting a trip to Vegas for my birthday if you’d like to come along.

Admittedly there are others out there coping with their issues much more constructively than myself.

@thatwoman tweets “National Invisible Chronic Illness Week! If you have one-blog it so we can all learn.” She also has some great resources over at her Tummy Troubles blog.

JoAllison writes about her gastroparesis diagnosis as well, and blogs about the foods she can and can not tolerate:

I’ve largely been okay physically in this month that I haven’t posted. I had about 4 days of a bad time (GERD breakthrough, bloating, constipation, pain, general yuckiness) but I went back on a liquid & yogurt/pudding/ pureed soup diet for about a week & increased the mirilax and it went away, thank the Lord.

Over at “The Road I’m On” there is a comprehensive overview of gastroparesis and all it entails.

Me? I tweeted about my party, because it took my mind off what that ONE beer I had would do to my stomach. Like I said, not nearly as constructive.

But there goes my phone alarm. Telling me it’s time to wrap up this post, and take two more pills. All part of my new life as someone with a chronic illness.

Contributing editor Erin Kotecki Vest also blogs at Queen of Spain blog, where she dreams of drinking beer and eating fried foods while debating politics with friends.

Girrl Power

Girrl Power

Complacency, Security, And 9-11

cross posted at BlogHer.com

On September 11, 2001 I was sitting under the two tallest buildings in Los Angeles.

On purpose.

I was sent there as events unfolded by my news director at KFWB to “wait and see if something happens in LA.”

As we all know, nothing did. However, across the country everyone was on edge. That’s probably an understatement as you remember that day. We were over the edge.

As Nicole at Pink & Posh remembers,

“It was just an out pour of sadness and events and terror. Terror. She made it home safely with only scars on her feet because she couldn’t walk in her pumps any more and decided that being barefoot was a better option. Anything seemed like a better option that day.”

So my job at the time, as a reporter, was to figure out what happens next. As the country was working to grieve and to heal, I was working to find out how and if something like this could happen again. Where was the US vulnerable and what did we need to do to protect ourselves?

It was quickly determined the nation’s critical infrastructure: our ports, our water supply, our communications, electricity…all those things could be hit and our country could be crippled.

I set out to investigate two of these infrastructures: ports and water supply. To say the results were astounding would be yet another understatement. I’m not sure, at that point in time, having just been hit with the 9-11 attacks, we could have felt more vulnerable…but what I found made me hesitate to tell the public just how easily this could all happen again.

At the ports of Los Angeles and Long Beach, which are our nation’s busiest and 2nd busiest ports, respectively, I could access tankers, major bridges, tank farms, and was unchallenged for hours as I slipped through holes in fences, unlocked gates, and from personal water craft. What’s important to note is the amount of the nation’s economy dependent on this port, and how commerce west of the Mississippi would halt if anything were to happen on these precious docks.

At LA’s largest aqueduct, I pulled a lock off a gate that was wide open, which I gave as a souvenir to my news director. No one stopped me. No one was around. No one seemed to care. LA’s water supply was wide open and waiting for an attack. I couldn’t even find a security guard.

I then sat down with Mayor Hahn and told him of my findings. He was as stoic as a politician can be in that situation, however just as deeply disturbed as I.

Since then, and I am proud to say as a direct result, millions upon millions of dollars have been spent in Los Angeles to beef up security. This went on as well across the country. From increased patrols (including aerial here in LA) to reinforced gates and cameras, to sophisticated security procedures, the critical infrastructure of this nation was shored up. And shored up fast.

But where are we now? So many years later and already seemingly forgetting about these threats. As it turns out, the Ports here in LA now tout their security on their website.

The water supply, after being declared secure on a national level, remains on high alert. As I drive by today you can still see the dozens of police cars, gates, and uniforms surrounding it’s perimeter.

Secretary of Homeland Security Janet Napolitano tells the Washington Post as a nation, they are doing everything possible to “reduce the risks” but individual Americans need to be involved as well:

“Well, probably not as prepared as we could be, and that is why this month, which just happens to be National Preparedness Month, we are really sending out the message about shared responsibility for individuals, it’s, have a plan; make a kit; get some of your training updated, or get some training if you haven’t had any before; go to ready.gov, which is our website, which has some pretty straightforward things that individuals and families can do.”

Napolitano also touches on he quadrennial Homeland Security Review currently underway and due in December:

“I think it will probably show that, for a young department, we have come a long way, but we have a ways to go. We have a ways to go in terms of information sharing, partnerships with state and local law enforcement–both of those are big priorities for us.

I think we have some things that we can do better in terms of explaining to the American people why some things are the way they are, particularly, for example, in the travel environment.”

But even with reassurances from the government they are doing everything possible, concern still exists. Just today the Coast Guard was involved in an incident being labeled as a “miscommunication” near the nation’s capital. CNN reports:

“The U.S. Coast Guard promised a ‘thorough review’ after a training incident Friday along the Potomac River briefly triggered concerns about the security of President Obama on the eighth anniversary of the September 11 attacks.

Federal agency emergency operations centers were not aware of or notified about the exercise on the Potomac, and they began implementing response procedures, a federal source said.

Even the police department’s Harbor Patrol, which is responsible for patrolling the river, was not notified, law enforcement sources in Washington said.”

And as of 2006 only 5.6% of the containers coming through ports in the US are inspected as they enter the US.

Not very reassuring.

As Barbara at Mommylife.net writes,

“Today I feel sad that our country seems to have forgotten that liberty requires vigilance – and gratitude for our country.”

Vigilance is important, and considering today’s stark reminders on news and all around us, perhaps we will remain as such.

Contributing Editor Erin Kotecki Vest also blogs at Queen of Spain blog

Yes, They Are Having Candy for Dinner- So What Of It?

Cross posted at BlogHer.com

My kids ate popsicles, orange and red to be exact, for breakfast this morning.

Today, about an hour before dinner, they asked for Twinkies while I was cooking. I said “sure, go for it.”

I’m a slacker Mom when it comes to food and I don’t really care who knows it. Ok that’s not entirely true. I care that my husband knows it, because it horrifies him. In fact, I think he stuffs them full of nothing but veggies and fruit on the weekend just to make up for my week filled with junk and meals that aren’t really meals.

I think appetizers are meals. I’m also ok with with those meals that start with ‘Happy’ … I know, I know.

But total truth be told, despite mornings of sugary cereal and lunches that may or may not end in ‘able’ they also eat well. My kids will eat sushi. They eat mussels and clams and slimy things a lot of other kids won’t touch. They will try anything and everything in the name of ‘adventure’ and that makes me proud.

Why? Because I try very hard not to make food an ‘issue.’ They aren’t those kids in the corner who’s only ever had one piece of candy and FREAKS OUT with excitement at a birthday party. Having an ice cream is a ‘treat’ but it isn’t the be all and end all of their day.

They also tend to eat in front of the tv. More than a lot. *gasp*. But hey, even Mocha Momma’s family agrees those sit down dinners aren’t all they are cracked up to be:

Don’t eat with your mouth full of food.

Jesus would think that eating with a mouthful is gross.

Yeah, what would Jesus do with a mouthful of food?

Jesus wouldn’t be mad about that.

No! Jesus would DO that!

Jesus wouldn’t eat with his mouthful. Can’t you hear his mother right now? “Jesus! Close your mouth!”

I think Jesus would want ice cream. Maybe a McFlurry.

For dessert? Oh, for sure. Jesus was all about the McFlurry.

You know, The Last Supper would have required some dessert. Can you imagine that Passover meal? I mean, seriously. Bland, boring food.

What did they eat at The Last Supper?

Unleavened bread. Bitter herbs. All that stuff with cut up apples and raisins. Right? Yuck. Jesus would need a McFlurry to wash away that grossness.”

I mean, there are even moms playing games at the dinner table. So I don’t feel so bad. Location isn’t everything. But I will admit nutrition is important.

My son will choose a mango over a sucker 50% of the time. My daughter eats broccoli raw, straight out of the garden.

But they both also had pizza rolls and twizzlers for lunch. Then again, we had a dinner of whole wheat pasta and turkey meatballs.

It’s all about balance. And moderation. And making food fun and NON serious.

One of my favorite dinner time , light hearted stories comes from Chris at Notes from the Trenches:

“Me: So if you could only have five foods for the rest of your life, what would they be?

Ice cream!
Ice cream!
Candy!
Pancakes!

But, wait a minute, if we had the ingredients tomake those foods couldn’t we make them into different foods instead?

No.

But why?

Because it is my rules and I say no. Only five already prepared foods.

But how would we get them?

Sheesh, I don’t know. They would fall from the sky like manna, okay?

But…

Just go with it, ok?

Soda!
Candy!
CANDY!
Gum!
LOTS OF GUM!!!

Okay, but technically those aren’t foods.

Spaghetti and meatballs.
NY Strip Steak, medium.

Now we are talking.

10 yr old: Brussel Sprouts.

At which point we all turn to look at him, the room falls silent.

Who are you? I ask.

We all laugh.

Do you even like brussel sprouts? someone asks over the laughter.

No. Not really.

The laughter bursts out of all of us”

Laughter at meal time. I love that,and sometimes it doesn’t matter what we’re eating be they popsicles or brussel sprouts.

Contributing Editor Erin Kotecki Vest also blogs at Queen of Spain blog, where her children are sticky faced and malnourished from too many pieces of cake for breakfast.

We Can’t Afford to Wait

Enjoy Your Labor Day Holiday

Smooshed with lovea>