The POUT Face & Why I Must End It…NOW

#allhailhala says "Hug a Lion's fan...like my Mama" #lions #whodat

I really don’t know why I’m surprised. My six-year old daughter was pulling out her full on POUT face (see above) for $99 Prada frames at the eyedoctor…even though her vision was deemed 20/20.

That’s right, she has zero need for glasses yet walked out of her exam having decided she needed a pair to go with ‘just some outfits’ and because several other little girls in her class had gotten glasses. Cue my very unoriginal ‘and if several other girls in your class decided to jump off a bridge…’ which then I immediately turned into a seemingly unoriginal rant about how she should have her own, independent style and it should have very little to do with eyewear. Doesn’t she want to be a trend setter?

But Mom these are dark pink and light pink, no one has those.

Doesn’t she want to show off her pretty face and her great vision?

But Mom, did you see the little diamonds on the side?

We can find OTHER non-prescription glasses at another store much cheaper if you really want a pair to just ‘wear.’

But Mom, I want THESE and this is the EYEGLASSES STORE. I don’t want to get my GLASSES from the grocery store.

Ok that one I’ll give her, and maybe the diamonds thing (they were cute) but I’m not buying a ONE HUNDRED DOLLAR pair of GLASSES (Prada or no Prada label) just so she can maybe wear them to school a few times, get bored with them, and then put them on her American Girl doll with whom she is now, also, bored.

This is my fault. I know. I deserve this, don’t I?

My Mother is snickering in Florida somewhere reading this.

We can have this argument when she’s 16. But not SIX. Which is stupid for me to say because we’re having it and she’s six, so let me just say this argument will make more sense at 16. So I’m cutting it OFF at six.

Or trying to.

Oh who am I kidding. I’m screwed.

I’ll just hand over the $100 now and call it a day. And then throw in a goose that lays golden eggs and rename her Veruca.

And don’t tell her that her Mother got the Versace frames. Oh screw it, tell her. I AM THE MOM AND I CAN GET WHAT I WANT.

No really, don’t tell her. I’m tired.

Magic Hats – The Ridiculous Collection

There have been hats that have come to my door stitched with love and care.

There have been hats that have come to my door with cards attached that have made me weep.

And then there have been hats that have come to my door that had me laughing so hard, I nearly wet my pants.

Ladies and gentlemen…I give you two of the most ridiculous hats to grace my doorstep:

That hat says #suckitLUPIS ... yes, Lupis ... which make it even more hilarious

In case I ever turn Republican, or a Ted Nugent fan, or decide I want to finally watch the whole ‘Wolverine!’ crap ass movie my husband and every other American male loves so much…this hat is for YOU. Yes, my good friend, and college floormate Karie sent this beauty from Arizona. Not only is it camo, but it also has not one but TWO flashlights to keep me shining brightly in the dark. But I’ve saved the best part for last…Karie had the had stitched to say “suckit lupis” …. snort. Yes. Lupis. Which is actually appropriate because Lupus is entirely pissy and makes me pissed.

Speaking of piss…

Tanis aka the Redneck Mommy sent me a doozy. A real, totally authentic Toque from the Great White North. Yes…Canada.

Of course the problem being she sent me some dumb ass team from up there…they had some dumb ass guy that was pretty popular with Canadians for a while. But what do they know, they like Nickleback and Justin Bieber.

So, in true ‘I’m from Detroit and the rest of you can bite me’ form, I took this:

Toque

That’s right…the Octopus is EATING the Toque. Ahhhh, I feel better.

For more about the Magic Hat project, started by my loving husband and pushed entirely out of control by YOU, click here.

The Red Dress and Its Siren Song

You might know the story. You might not.

Sometimes things happen inside the blogosphere that stay there…and sometimes they break free of their Internet chains and spread across globe in other forms from newspapers held with your hands, to tv news to even a story your Mom told your Aunt who told your Cousin and didn’t you know?

The Red Dress is one of those stories. You may have read about from the woman who started it all, my friend Jenny, otherwise known as the Bloggess. You may have seen it on Forbes this week. You may have heard rumors about it from your friend’s mom’s hairdresser’s nail girl who heard it from her aunt.

I can tell you the Red Dress is real. The Red Dress is powerful. But most importantly…

…the Red Dress is sitting in a box in my bedroom taunting me. 

Yes. I have it. The original Red Dress. It just left the hands of my friend Kelly, otherwise known as MochaMomma. The box has Jenny’s addy on and Kelly’s addy on it and it looks like it’s been through many hands before it made it’s way to my house in California.

Everyone has looked fabulous in this dress and it has given them a feeling of …well…whatever it is they needed. Accomplishment, be it getting over their fear of dressing up so boldly, or showing the world their scars. Pride, after having gone through something challenging and conquered their mountain. Even love, having finally learned to accept who they are and who they want to become.

And now it sits here with me, and I can’t get myself to even put it on. My mind is so out of sorts, having heard my doctor fill out disability papers calling me incapable of so many things.

Unable to participate in cognitive thinking for long periods of time

Unable to travel by plane, train, boat, car, or bus

Unable to stand for more than one hour

Unable to sit for more than one hour

Unable

Unable

Unable

I know I’m having issues with my memory and mind. Every time I speak to my husband it’s clear the inflammation is high and it’s targeting my brain. I don’t remember things that are so simple, and it’s a wonder he doesn’t get more frustrated with me. I get so frustrated with myself I want to tear my hair out.

I’m not sure there is any worse torture than your brain not working right…except for maybe the damage done to my body by the disorder and the many medications and treatments used to keep it in check.

My mind is not my own. My body is not my own. I’m some absent-minded, fat, moon-faced stranger occupying the body of a woman who had the world in the palm of her hand, and feels all of it slipping away piece by piece. Now I’m squeezing everything so tight in that hand I’m suffocating what’s inside.

So the Red Dress has been sitting in the box taunting me since well before the holidays. I had a million excuses to not open it and leave it shut. Then I had a million more to just open it but not take the dress out. And tonight, dress in my hand, I ran my fingers over the gold stitching. I ran my fingers of its lavish poofs and strapless top. I wondered how I’d ever fit inside, and if being unable to close the clasps would destroy me even further.

I want to believe in this dress. I am a huge fan and freak of superstition and the power of the dress is right up my alley. Thus my request to Kelly and her permission from Jenny and now my big, fat, chickening out feelings as it sits here.

I’m not one to back down from a challenge. But my God there have been so many lately I didn’t expect one from a dress.

Yet there it sits.

If there is one thing I have learned in my many years of blogging, it’s that these women (and men) will not let me down. We might bicker over issues and we might disagree on which way our community should go and ebb and flow…but when push comes to shove we have each other’s backs. So I know that if they all say believe, I will believe. They wouldn’t lie to me.

Soon I will put on the original Red Dress. I will hire someone to make what is left of my hair look thick and I will hire someone else to paint my face and I will hire a photographer to do his or her best.

And I will stand proudly and feel the magic flow through me. If not from the dress, but from the women it represents, and their strength and power and passion.

You. You will help me do it. And for you I will do it. Not looking like myself and not feeling in my right mind and not the me I want you to see-but someone how, for you, the real me will hopefully shine through.

Of Dogs & GOP Compassion

It’s no secret I’m not a fan of any of the GOP candidates for president and I will be working hard to re-elect President Obama. But there is something really, really bothering me about Mitt Romney, and I can’t shake it from my head.

I heard it as a rumor at first, dismissing it like I dismiss so many things during election season…but then it came into the main stream media: Romney strapped his Irish Setter to the roof of his car in 1983 and drove all the way to Canada on a family trip. Seamus was so scared he pooped out of fear.

I realize we all treat dogs differently in our very different families. Some are used for hunting. Others are always kept outside. But in my family, the dogs are PART of the family. They sleep in our beds and eat our food and certainly ride INSIDE the car when going somewhere. I know some state’s have laws about strapping your dogs to the back bed of your pickup truck. I know some people think these are ‘just animals’ that can handle the outdoors or whatever…but Romney put the family dog ON THE ROOF OF HIS CAR AND DROVE AND DROVE even telling his kids they were stopping for gas and that was it.

Apparently I’m supposed to feel better Romney built a ‘windshield’ so Seamus wasn’t smacked by the 65 mile an hour drive winds. Apparently I’m supposed to feel better that this compassionate family man didn’t really give a crap that his dog was in a carrier, on the top of the family station wagon, while the family was warm and cozy inside the car.

Any man like that has told me more about his character in one family vacation, than I ever need to know. Forget telling me about his policy, his stance on issues, his ability to govern. He’s the kind of man who thinks so much of the family dog to make the Irish Setter luggage on top of his roof rack. His dog was nothing more than LUGGAGE.

Yeah. He’s that kind of guy.

As a mother who cares about family matters like health care, education, family leave, etc. I am happy to get into it issue by issue, candidate by candidate…however Romney’s family man bravado and fatherly decisions tell me more about him than any debate, campaign slogan, or press release ever will.

He’s that Dad, and there is no way I want him in the White House or any other house in my neighborhood or country.

Nicky lounging on the couch

Our family dog Nicky…who I would bet wouldn’t be allowed in Mitt’s couch like he is on ours.

I hope Nicky’s type of dog life is way more common than Seamus’. Because any family pet deserves better than being treated as luggage by the patriarch who is clearly lacking a heart…and possibly any common sense.

Magic Hats – The Handmade Collection

Amazingly people worked hard and put together hats to cover my head. It amazes me that anyone would go to the trouble, let alone so many of you.

Speaking of amazing, today’s hat collection is brought to you by my daughter who INSISTED she get to model at least ONE Wednesday hat post. So without further delay here are the hats made with love, given to you with the love only my little girl can show in these photos:

You can learn more about the Magic Hat story here.

New Years & Golden Hearts

Some years on New Year’s Eve my parents would have friends over. They would go to the hockey game (the Red Wings ALWAYS play on New Year’s Eve) and then they’d party. As I got older sometimes I even got to go to the game, but mostly the adults went, leaving us with a sitter. Upon their return, they would put us to bed upstairs and we could always hear the drinking adults downstairs laughing and talking…getting louder as the night wore on, until eventually we fell asleep.

But when I was much younger, little enough to still be sleeping with a stuffed animal or blanket, I remember my parents taking my brother and I to our grandparents home – a good hour or two away from where we lived. We’d spend the weekend with my grandmother and grandfather.

These weekends were always a bit special, and I can trace just about everything I love and adore back to those special two days in a row in Lexington, Michigan.

My grandfather would take me out to his garden, and show me his cucumbers and tomatoes. Which somehow became the best pickles I’ve ever eaten and the best tomato sandwiches ever made.

My grandmother would read and eat her hard candy and open gifts. Gifts my parents would pack but also gifts we grandkids would make throughout the weekend. You see, her birthday was December 31st. Which meant not only did we get to celebrate a New Year but also a birthday. If I found a wrapper in the trash? I’d color on it and it would become a birthday gift for my grandmother. If we found a pretty rock outside on our walk down to the lake? Yup…gift for grandma.

Just before midnight every New Year’s Eve my grandfather would get out some orange juice in fancy glasses and we’d get ready to toast grandma and the New Year. I also remember her blowing out a single candle on a single piece of cheesecake she made herself. My grandmother’s cheesecake was amazing, so I’ll give her a pass on making her own cake on her birthday. And of course none of us have been able to duplicate it…no matter how hard we’ve tried.

Then, at night, I’d sit on her bed with my cousin and watch her take off her clothing very carefully. And I would watch her put on her pj’s very carefully. I can distinctly remember her always asking for help with her necklace. As a child I just assumed it was so special and precious she needed help taking it off so it could go in that special jewelry box she had on her dresser. The one she would sometimes let me open and I would marvel at the jewels and trinkets inside. Many times I would be poking through that jewelry box while my grandfather removed the necklace around her neck.

I must have seen this ritual at few dozen times as a child. And I always wondered what was so special about that necklace.

It wasn’t until after her death I realized what was going on. Like me, my grandmother had horrible pain from an auto-immune disorder. Her’s was rheumatoid arthritis. Yes, I have it along with my Lupus but as her life went on she became crippled from the disorder. She had trouble unclasping her bra. Taking off her clothes. And that’s why she would take her time getting undressed all those nights on her birthday. As a child it all seemed like some elaborate game of dressing and undressing.

And my grandfather would always help her take off that very precious necklace, not because of its significance, but because of the pain she felt just trying to unclasp the hooks.

Or was it both?

I still can see those orange juice glasses toasting my grandmother and the new year. I can hear the clink as we said Happy Birthday and Happy New Year all at once, chaotically and with as much excitement as any kids allowed to stay up late could do.

And now as I hold that precious locket attached to that necklace I think I know better. Or at least I’d like to think I’ve romanticized my grandfather helping her take off that locket, and the many years of toasts.

My Dad tells stories that are typical of that era. Of my grandmother raising five kids while my grandfather worked, of course, for the auto industry in Detroit. My Dad talks about his great  grandparents in the home cooking and smacking him with a frying pan. And then he mentions how different his father treats his grandchildren, as opposed to how he treated his own children. There are tales of grandma sending kids to get grandpa from the local watering hole…and things I just can’t fathom from the sweet man I knew who always bought me jewelry with my birthstone and made sure my basketball team had chocolates before every game.

So in my young mind, my grandfather helping my grandmother remove her locket every night was an act of sweetness, not of necessity.

Their’s was the era of separate bedrooms, where I cuddled with my grandmother and she sang me songs to sleep, while I could hear my grandfather’s radio coming from his room. Always listening to a baseball game or the news. And when we weren’t in bed, they still shared separate interests as my grandmother would string her gum wrappers together to make me a necklace or attempt to knit or crochet. I can’t imagine how hard that must have been for her, given the pain I now know she had and I certainly know how it feels. My grandfather would remain in his room listening to that radio..always the radio…or cooking for us. I always wanted my favorite, Czernina, and I can remember smelling it simmer all day as my grandmother read tabloids or used her crippled hands to make some magical bracelet or crown for my head.

But I will never forget that nightly ritual…watching my grandfather carefully remove that locket from her neck. Kissing her cheek goodnight. Never her lips. Kissing her cheek goodnight and then retiring to his radio and single bed in the room around the corner from hers.

Years after my grandmother died I remember my other grandfather, my Mom’s Dad, attempt to get my grandpa to join him on one of his adventures. It was a cruise or a senior’s excursion of some sort, and my grandfather would refuse. Waving his hand he’d say ‘no…no….I might have done that with Helen but no, now I just want to watch the news and go to bed.’

And so it went, and continues to go, with my grandfather never having wanted to do much after my grandmother died. He would come to my brother and I’s games and shower us with affection…but that’s where it ended.

He told me he was just holding on until my high school graduation, then he would be joining my grandmother. Then he said he was just holding on for my brother’s graduation. My cousin’s. My wedding. My bother’s college graduation. My cousin’s. Then he said he was just waiting for my son to be born. We named him after his father, my great-grandfather. And for this he was appreciative and then typically told us maybe he gave us the wrong spelling.

Then he was only holding on for my daughter to be born. And when she arrived, early, we gave her a Polish nickname that meant ‘Helen’ and his silence was all I needed to know how much it meant.

So every New Years this is where my mind wanders. To my grandmother. Her birthday. That locket. The one I now carry with me at all times because it was what I was given upon her death. The one I watched my grandfather remove every night I ever stayed in their home, or they stayed in ours. The one my husband held to take this photo, and I couldn’t help but notice his wedding ring and her heart of gold.

My Grandmother's Locket

Happy New Year.

Overwhelmed

I’m supposed to show you more photos of all the Magic Hats that have come to my door today. It’s Wednesday and I promised Wednesday hat updates.

But instead of showing more photos today, as I had planned, I needed to stop for a minute and say a few words about what has transpired:

You have knocked me off my feet.

Not the kind where the guy with the big check comes to your door and the little old lady answers and looks shocked for a minute and then screams and jumps up and down. But the kind where you draw in air and hold your breath and  cant’ let it out…and when you do it’s so slow and deliberate that you just cry. And cry. And cry a bit more because you just don’t know what else to do.

I think what put me over the edge was a box from one of Aaron’s cousins. He included a poem, written in honor of their grandmother, who used to write poems for just about everything…including the day I became a part of their family.

Many of you hand made me hats. You painstakingly used your hands, something I can’t do, to make something just for me.

Or some of you went and picked out something you knew I’d either look fabulous in or would laugh at hysterically or would love, not matter how tacky.

The point being you took the time to truly think about me, even if it was just while shopping for the holidays or grabbing yarn at the store. I’m thinking i really do know some of the most amazing people on earth. And am related to a lot of them.

The other reason those photos are missing is because I’m holed up inside my room, after a long day of all my in-laws being here, including my husband’s brother and his family. Yes, my kids are playing with their cousins for essentially the first time….since the last time everyone was really too little to remember. My home is filled to the brim with laughing and yelling and kid noises that somehow don’t sound nearly as bad as playdate squeals or sleepover threats to ‘get to bed now kids….’ because it’s family – family that probably won’t be together again for another long stretch of time.

So yes, I am overwhelmed because the hats KEEP COMING and the love just keeps enveloping me until nothing, not even Lupus, can break through. Ok, maybe it does from time to time when I need to excuse myself to lay down for a bit…but even then there are hats all over reminding me to stay strong. They are up in my bedroom and down in the living room and by the front door and coat rack…and soon to be hanging on my new hat racks…made with love by my three greatest loves on this planet- my husband, my son, and my daughter.
The beautiful hat racks handmade with love by @aaronvest & kids -photo helps incase I forget them in 5min #lupusbrain

Thank you. All of you. Those words seem so easy to write but please, please understand and feel the weight behind them. You all inspire me to try harder and to fight harder. Thank you.

Rock Star Kid

Our son on the front page - because Science & Art ROCK!!!

There really is nothing more you can do to boost a child’s confidence than wake up to find him on the front page of the paper. And NOT for robbing a bank or something horrible…nope. For being a kick ass kid, who is quirky and fun and so smart.

Yes, I’m a proud Mom…but hear me out for a second- do me ONE favor, please..just one: Make sure you are encouraging your children’s dreams. Even if they seem insane. Even if that means they take a part your toaster. Even if that causes you to have to drive two hours every Sunday to a horse ranch (his sister) or even if that means telling them that anything, truly anything is possible. Even if you have to sacrifice more than ONE toaster, or DVD player, or old VCR.

Stop being stuffy and worrying about the stain it might make on your grass if you explode Mentos and pop. Let go of the idea that paint everywhere might destroy your table.

These are things I have had to learn to breath deeply over in the beginning. And I am so glad I have learned to forget about all the little things and instead embrace the fun and sometimes totally disgusting (family of caterpillars in my HOUSE anyone?) things in order to show my children how much fun learning really can be- and how it can truly bring them closer to their dreams.

This is also where I am glad my husband, even though sometimes it drives me nuts, is a giant kid himself. Because when you combine that with my children’s love of learning and science and animals and insects..you end up with two little rock stars who can and WILL do whatever they want in life. And I couldn’t be more proud.

*I can’t leave out the two teachers who have helped guide my kids through their first years of school, as scary as they were for us, after we left the ‘traditional’ classroom. Jenny Williams and Ana Donovan have been those teachers who my kids will never forget. You know, the ones where people ask you ‘who was your favorite teacher?’ and you immediately have fond and wonderful memories of those ‘special’ teachers that touched your life and made you who you are. Not only Have Miss Jenny and Mrs. Donovan done that for our kids, but they’ve done that for our entire family. Jack wouldn’t be on the cover of the newspaper were it not for them and their constant insistence that he can be JACK…not some strict and strapped down version of Jack. But Just Jack. Because he’s perfect just as he is.