Tonight my daughter asked me if I would come home from my next surgery alive.
I’d been telling the kids that I’ll undergo yet another surgery in a few weeks time, and that everything was going to be ok.
They didn’t want to hear it, all they wanted to know is if I would be alive after it was all said and done.
Mommy is going to be fine honey.
Everything is going to be ok.
No, it’s not cancer.
How do you explain to people that- yes, you have an illness but it probably won’t kill you? How do you ask for help when you know so many have it so much worse?
I’m going to lose a chunk of my colon in a few weeks to try to stop the infections that have been ravaging my body since last summer. This after two hospital stays and a surgery. My family and I are hoping this is the beginning of the end, and the kids are getting so used to me being sick… it’s passing as ‘normal’ life around here.
Maybe I’m naive to just pour it all out here on my blog, but it’s what I’ve always done. I’m so sick of this. So sick of being sick. So tired of being in pain. So tired of thinking one part of my body is going to be removed, only to find out another is going in its place. My reproductive system has taken a beating. My gastro system hates me. Everything is one, big, infected and inflamed mess that is just screaming to be helped and healed. It’s stressing out my husband, my kids… me.
Yet I sit here feeling guilty I whine and complain about it because it probably won’t kill me. It won’t be terminal. It won’t be life threatening and I should really save my complaints for something that really matters. Is it a huge pain in the ass? Totally. I’ve been out of the hospital a week now and I can barely function. Today I went to the doctor, the grocery store, I cooked dinner and I picked up the kids from school and I’m exhausted.
Can I live like this? The short answer is no… but I have been living like this for so long. Every turn of my torso hurts and every food I consume may or may not turn me into a writhing mess. No, it’s no way to live but one could live this way if needed.
I don’t know. Maybe I’m just getting my frustrations out. I want to yell and kick and scream about other people and their perfect bodies and how they can just eat what they like and exercise how they like and travel and run around and do whatever… I want to be mad at someone. At a doctor who missed something along the way or a friend who is over the whole ‘oh you can’t come because you are sick’ thing.
But there is no one to be mad at and no one and nothing to blame. My body has a problem, doctors are fixing it, and everyone around me is being supportive and lovely.
So I write. I write to put words in front of my face and to bang my fingers against keys that some how release my frustration. I write because, before me, someone else wrote and I read it and said ‘ah ha! yes! me too!’ and instantly felt less alone. And I write because it makes me feel alive, something I promise the kids I will be when this is all over.
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