Love Taps

I remember that feeling sitting in class, going through each Valentine and wondering if there was a deeper meaning to ‘Bee My Valentine’ with the picture of a bumblebee flitting around on that breakaway card that came in a pack of 24.

Because that is what some of us girls do. We look for the deeper meaning and hold the Valentine against our chest convinced the bumblebee was a symbol for something that was a symbol for something that was a symbol for something that clearly meant the boy who scribbled his name on the bottom loved us more than anything and we’d get married and have babies and live happily ever after.

No really.

I did this.

I still do this.

And I’m married and I have kids and I will continue to live happily ever after. Even if every day I want the ‘I love you’ and I want to hold the Valentine against my chest and dream.

I watched my daughter go through each and every Valentine from her bag last night. My son tossed his on the ottoman and only dug inside to find a piece of candy. And I realized some things just don’t change.

At one point my daughter came over to me and said “Mom, no one got you a Valentine…we didn’t get one for you.”  And upon hearing those words my son immediately stopped his game (so you KNOW it’s a big deal) and rubbed his hand up and down my arm, consoling me. Truly worried and upset I had no Valentine.

It’s ok Mom, you can have one of mine.

And I explained, again, their father and I have our own tradition. And that just as he had to sign each of his Valentine’s for his classmates, someone signed that Valentine for him, and it wouldn’t be right to give it away. Even if it was very sweet.

Sweet matters. Traditions matter. That time taken to scribble that name on the bottom of the card matters. But I have learned it matters more daily, not just on the ONE day. It matters in the morning when walking out the door. It matters at night when going to bed. It matters when scared and instinctively fingers intertwine.

Today, the day after Valentine’s Day, I sat in the waiting room of my doctor’s office feeling miserable emotionally. I wanted to be clutching that Valentine to my chest and making juvenile wishes. I wanted a hand on mine to calm down my beating heart.

Instead I was sent an elderly man who didn’t think twice about walking right up to me and asking about my scarf.

Did you make that?

And he actually poked it with his cane.

Just reached on over and poked the scarf hanging around my neck with his cane! Then he used the cane to lift the bottom of the scarf up and examine the stitching.

In my head the first thing I thought was…oh please, not now. I don’t have the energy.

I explained I did not, in fact, knit the scarf but I wish I had the talent. And I smiled politely hoping that would end the conversation.

But he kept going. And going. And going.

His wife wandered out a few minutes later, I’m not sure how many, glanced at him talking to me and seemed to survey the situation…was he bothering me too much? Was he talking too much? Should she intervene? I gave her a polite smile letting her know it was alright, we were fine. She seemed to decide I had it under control and went back to writing a check at the front desk.

Over the course of the next 10-15 minutes I learned my new friend was 87-years old and his wife of 62 years (!!!!!!) was a young 85. I learned about his time in a ‘trio’ where he played guitar for a ‘blonde bombshell’ and traveled. But he always came back to his wife.

He gushed over her like they were newlyweds. Gushed.

Then his wife came over and motioned for me to move my purse. She too used her cane. Of course I couldn’t help but think of my own cane, sitting unused in my car. Thankful it’s unused right now….I obliged and picked up my bag and moved it to the ground so she could take the seat next to me.

As she took the seat her husband immediately told her I did not, in fact, make the scarf I was wearing and that I was, originally from Detroit and that my husband and I had Italian food for Valentine’s Day.

But why was I there? In the doctor’s office?

I didn’t want to tell them.

For some reason it just didn’t feel right to tell them I was there because I’m always there. Because this is my life.

I told them I was having stitches removed. And it was as if the wife knew I was lying to her.

She patted my thigh and said ‘we all have our crosses to bear, don’t we dear?’

And I cried.

Right there in the doctor’s waiting room I cried with two strangers.

Luckily I held it together and it wasn’t an ugly cry. And wise beyond their years this couple just kept talking, as if my tears were as normal as the conversation they had decided to just carry on with a woman they didn’t know in the middle of a doctor’s waiting room.

They made me laugh.

Every time the husband would compliment or gush over his wife, she would roll her eyes and say something like ‘oh, he’s just making up for all the trouble he causes’ and playfully smacked him with her cane. It was a good smack too. You could tell she had done it a million times before.

Then, as if reality emerged loudly with the opening of a door and the BOOMING nurse’s voice ERIN VEST… ERIN VEST…the door opened, they called my name, and the couple stood up with me. The 85-year old woman handed me my purse, when I should have been helping her with her cane. As they headed to the door the husband said ‘Now you know that she is all that matters…’

As they were leaving he said 'now you know that she is all that matters'
…and the wife looked back and me and rolled her eyes one more time and shook her head.

I was thankful to have met them today. 62-years of marriage and they were playful and loving and clearly taking care of one another. They gave me such hope.

They reminded me of why we hold that Valentine to our chest and let our heart beat fast and why we dare to dream.

I also now know what to do with that cane of mine…currently and thankfully collecting dust in the back of my car. I will just save it for years from now, because apparently it will come in very, very handy later on when I can’t lean over as quickly or reach as far to give my husband a swift tap when needed.

 

 

Miss Teen PWN

I am, by nature, a worrier.

So imagine what I did when this came in the mail:

Miss teen Hala?

Do I show her?

I know when I got the really horrible, everyone got one, scams in the mail about modeling or pay-to-see-your-name in some book of smart kids, it was the sort of thing that boosted my tween or teen self-confidence.

Of course there was no way in hell we’d ever let her do it. So there was no harm in showing her, right?

But then again, we always said we’d support her in whatever she wanted to do so…

…no. No. NO. NO.

Also…

NO.

Pageants are for girls who are either desperate for money and can only get it because they are pretty or … or… I have no idea. I mean these things are judged on looks, right?

At least that’s what Sandra Bullock taught me. Well, her and Donald Trump.  Walk walk … show them how pretty you are…walk more… show them how pretty you are in different clothes. Walk more. Then answer some crazy question about current events and smile pretty for the boys.

So of course, I showed her and told her what it was all about doing my best to leave my snark behind to genuinely be able to gauge what SHE thought of all this and what SHE thought of a ‘pageant’ … did any of the girls at school do this sort of thing? I mean, we live in a ‘burb of LA, there are many child actors around and at the school and many have headshots and can turn on the cute in order to get a gig. Surely with the popularity of Honey Boo-Boo and Toddlers and Tiaras, there could be a few in her grade, right?

So I showed her and explained and waited for a reaction…

My 7-year old was disturbed by the letter. Grinning and flattered, but disturbed.

Why would they want me for a teen thing? I’m not a teen? And why would I want to do that on a Sunday- that’s when I go horseback riding at the ranch.

Case closed. Whew.

Or so I thought…

What I hadn’t counted on was her brother chiming in. I don’t know why I hadn’t counted on it…he’s always right there with us and NO ONE and I mean NO ONE cares more about his sister than big brother.

Hala, listen to me…I really don’t want you to be famous like that…ok? I’m serious.

Ok Jack, I won’t.

No, really. I mean it. That’s not how you should be famous. You are too smart.

I know I am Jack!

I know you are too.

Suddenly I was the fly on the wall witnessing one of the most touching and amazing exchanging in sibling history.

I wouldn’t do that anyway, ok?

I didn’t say you would. I’m just making sure.

Can you move over now? Because you’re in the way of the game and I can’t see my guy and he’s about to PWN you.

MOM! She just totally blew up my whole new rover I built!

Pauses a beat.

That was kind of cool.

…and all was right with the world.

This morning before school as they begged to skip breakfast in favor of more iPad time

A President, Dr. King, and My High School: Forward

Long ago, back when microwaves were new and we still used VHS tapes, I spent many long afternoons in the Journalism room at my old high school in St. Clair Shores, Michigan. During one of those late nights when we were rushing to get the school newspaper together (times I still think about and cherish more than any grown woman really should) I wrote an article arguing Martin Luther King Day should be celebrated by my high school.

At the time South Lake High did not recognize the holiday and if you were lucky one of your teachers might make you do a worksheet about Dr. King’s life…but I honestly don’t remember ever even doing that much.

We were a predominantly white school. Detroit was literally across the railroad tracks. You would never have known it was a holiday, or even an important day in history if you walked our halls in late January. Yet all around us Dr. King’s legacy was being honored…but no, not here. It was just another day in privileged suburbia.

My article was printed in the January edition of the Lancer and there were some who just thought I was asking for the day off. Of course had they read the damn thing they would note I advocated there to be LEARNING behind our acknowledgement of the holiday…yes, the angst filled teen in me lives on.

2013.

It has been 20 years since I graduated and I’m told there is no school on Monday.

I had to confirm the news with people back home. I’m still not entirely sure I believe it…but there is more. And it is making the inauguration of President Obama and the MLK celebrations that much sweeter.

South Lake will be hosting the annual Martin Luther King Day Celebration with the Youth Diversity Council and the Michigan Roundtable for Diversity and Inclusion. My child hood friend and fellow alum Edward Cardenas writes,

The event will honor the work Dr. Martin Luther King with a local flavor including the viewing of a student-produced video and presentation of a community quilt. The quilt, was the idea of South Lake Principal Carmen Kennedy, who is also the event’s keynote speaker.

Twenty years and I am finally seeing an amazing change. The celebration of Dr. King’s legacy at my high school…where what once was our all white and privileged hallways didn’t bat an eyelash as his birthday passed. A Youth Diversity Council! Just learning of this (which I understand has been going on for a while now) had me grinning ear to ear.

Yes, the demographics have changed as have the times but we have moved forward. And we continue to move forward as a nation. I’m not sure if the President knew just how appropriate that slogan was when he and his campaign asked the people for a second term.

That, just like my old high school, our nation must move forward and we must finish what we started.

FORWARD, hope, change…those were just a few of the reasons my children and I attended the Democratic National Convention to see the President speak and accept his party’s, OUR party’s, nomination for a second term.

DNC 2012

So as the nation watches the President take the oath of office, I will be thinking of how much has changed since those days twenty years ago. And sadly, how much has not changed.

I will savor the good that has come of President Obama’s first term and prepare for the hard work that must continue in his second. I will think of the articles my children may write in high school, and how they will differ from my own in the hopes their battles are somehow not as profound, not as landmark. Yet I know each generation will have their challenges. Although that is almost the beauty of all of this really as we watch history unfold.

With the change we have already seen, and the hope of four more years…I have no doubt we will continue to move forward.

Together.

The Power of One

I’ve been careful about leaving the news on while the kids are home. With the school shooting and other tragedies, it’s just been too much for them to see.

So imagine my surprise last night when a piece I thought was rather benign on the pollution issues in Beijing caused tears and hysterics in my living room.

My 9-year old son could not believe what he was seeing. He wanted to know how the earth could be so dirty and polluted and how we, as humans, could let this happen.

Is it the cars?
The factories?
All the things they make, like my Nerf guns?
Why don’t they care?
Why can’t they stop it?
What if that happens here in Los Angeles?
What about our country?
Why do businesses care more about money than fixing this?
Why isn’t ANYONE DOING ANYTHING?

And the tears were streaming. And I did my best to calm him down and tell him many people were trying to do things, but every country was different. And every country had different rules. And even in our country people are fighting those rules.

He yelled "I love being a geek!" after opening most of his toys

He thinks those of you fighting the rules are horrible people. He thinks anyone against EPA regulations aimed at helping the earth are good and true and just and he does not care if that means some people don’t have a job because they at least will be able to breathe and drink clean water. He tells me OTHER jobs can be created with new inventions that keep the planet CLEAN. He does not care if that means he does not get a certain toy, he no longer needs it or cares.

The images haunted him all day and night and he would periodically stop his video game to ask me how many people might get sick from that smog. How many people might die. How plants or trees might help.

Then at bedtime, as I tucked him in…he began to softly cry again. He didn’t think there was anything a 9-year old boy could do.

I told him he was wrong.

And now, dear friends, I want to show him he’s wrong.

Help me find things a 9-year old boy can do to help – from planting trees to raising money to joining Greenpeace to… whatever.

Show my son he can make a difference. Show him the power of one and how it then multiplies and creates a movement.

I KNOW there are others like him…others that are devastated to see pollution take over what he calls ‘those mountains that are so so beautiful I can’t even see them’ and ‘all those trees that they keep cutting down instead of letting grow big and tall…it makes me so mad Mom I just want to hit my pillow.’

Show him. Show him instead of hitting his pillow he can DO SOMETHING and it WILL MATTER.

Help me show him – leave a comment with your ideas. Please.

I know he can do something amazing with his passion and his talent.

…And Some of You Just Eat Chicken Soup

I just want to get a cold like a normal person.

They call me...LUPUS QUEEN!!! Able to save organs with asshole steroids & love my family while drugged!

I want my husband to be annoyed I whined and whined until he said ‘FINE’ and picked up yet more tissues AND more chicken noodle soup, even though clearly all I have is a COLD and I can go get them my own damn self.

All I do have is a cold. I CAN go get things my own damn self.

But then again, I can’t.

My doctors did not even want me in urgent care- too many germs. The ER? Hell no…WAAAAAAY too many germs.

Despite me feeling strong and despite my overall health improving greatly- my immune system needs to be destroyed every so often so they can rebuild it stronger, better, bigger, more advanced….we have the technology! (Did I mention it’s 3:23am and I haven’t slept in days thanks to steroids and new drugs to take care of this cold/virus/thingy?)

Anyway, this time around our timing was off and that miscalculation has cost me dearly. Imagine being the ONLY ONE in the house – where elementary school children live – who gets PINK EYE.

In other words, if it’s going around you can BET I will be catching it. Leaving me in this horrible position of feeling strong enough to maybe help out around the house a bit….throw in a load of laundry, pick up some toys, disinfect that tea-cup I touched. However, every time I use energy I sacrifice precious healing power.

My cold, of course, caused a nice ear, nose, and throat infection which got into my chest and caused a nice upper respiratory infection which they either like to call ‘walking pneumonia’ to scare you or I now have walking pneumonia. But I’ve had that shot (flu and the pneumonia one) and at the first sign of any issues I get a nice bed at Henry Mayo Newhall Memorial up the road.

But you see how all of this just started with me having a cold? One normal, stupid, booger filled, run-of-the-mill cold?

Kids are on edge worried I’ll land up that road in that bed. Husband is taking it well, knowing we’re only at ‘Defcon 1’ as it was dubbed tonight.

I’m on oodles of antibiotics and for the first time in two years I feel like I JUST HAVE  A COLD.

STAND DOWN PEOPLE.

But Lupus is a cruel bitch that way. Auto-immune disorders are all sneaky sirens. They have you believe you just have a typical runny nose and cough and !BAM! suddenly you are occupying that bed up the road as they work to get the infection out of your lungs instead sitting on the couch in your pj’s playing new video games Santa brought.

So I will keep taking these antibiotics and resting on my couch. I have a date with a nine-year old to play some video games this morning.

Then later today this seven-year old and I have a rematch:

Whatever Mom, I'm going to kick your chess butt #allhailhala

And if the stars align, this hot stud and I will do some quality napping just to make sure EVERYONE stays healthy…

#2013 @aaronvest kicked in the new year napping all day. I made dinner & did laundry happily. About time #suckitlupus

It beats that bed up the road by far. That stuffy place doesn’t even let my youngest come in…

Yes I did this to @nickythepup

All for a cold.

2013: The Year of NOW

Cue the confetti…

Happy New Year!!! Welcome 2013!

2013 is the year I reclaim my life. It is time to become a better ME, with Lupus and with everything I have.

I know New Year’s resolution can be lame…but this one is different. I’m actually on the brink of a breakthrough. Stop me if you’ve heard THAT before…

You see, there are people who live with this disease (and the many other diseases that decided to come along with it) and spend their life in and out of the hospital (been there) and undergo surgery after surgery (been there) losing organ after organ (been there).

But I’ve decided I’m done.

Yes, just decided.

It helps we seem to have found the right drug cocktail, even if we haven’t found the right schedule. It helps that I have been pumping good plasma into my veins for a year. It helps that when I physically feel better, I can actually sense the change in my body, in my mind, and even in my rest.

When you live with pain for so, so long you certainly notice when it is gone. But you notice EVEN MORE when it comes back.

I spent 2012 doing some very important things…learning my limits. Learning how to balance all the things I need to get done, all the things I want to get done, all the things I just can not do.

That may sound so simple to you, but it’s really hard for me.

Now I need to learn how to make the most of my new normal and make sure I am being the best wife and mother I can be to those who have sacrificed more than they should to make sure my life is comfortable and to make sure I had the space I needed to figure all this out.

Appropriately the my family we spent New Years’ Eve putting together a puzzle. Most of New Year’s Day too. It’s still not done. It may never be done. But every so often now we walk by and add another piece to the finished product. Slowly. Adding to the new normal of DONE.

Starting #nye with a candy puzzle because we know how to party HARD

Because eventually this puzzle will be done. It may always be a puzzle. It may always be in our home, in my body..but it doesn’t always have to take up the whole kitchen table. It doesn’t always have to be the major factor is EVERY DECISION.

Nope. It’s time to reclaim our lives for US. We’ll carve out a place for Lupus and all its luggage, but it gets a corner or a closet and we all move on with it in tow.

2013: The Year of NOW

…it’s time.

One Helluva Lesson For Christmas

10:45pm on Christmas Eve and tears were streaming down my face as I helplessly drove around our neighborhood trying to WILL a major store to be open.

Every single emotion leading up to 12/24/2012 at nearly 11pm was pouring out of me. The illness. The pain. The toll on my family. The issues going on in my life unrelated to Lupus, my inability to work, my Aunt being sick, an Aunt I was missing terribly who I lost the year before, other family being too far away…every emotion just exploded and I had to pull over into an empty parking lot to cry.

The lights of the Toys R Us sign in a dark parking lot are depressing as hell when you are the only Mom sitting under them.

Only a few moments before, as my husband and I unpacked the sea of boxes delivered to our door, did I realize the NUMBER ONE gift my daughter asked for was missing. The tracking for said package showed it was ‘in transit’ and ‘should be at your door.’ Yet there was no confirmation it was delivered and no trace of it once it entered the shipping facility on December 12th and was scanned.

The one thing she asked Santa for. The one thing I knew I ordered well in advance and OF COURSE was in one of the gazillion boxes sitting there. Because why would I check? That would be way too smart. This was NOT HAPPENING.

It was also the one thing I totally OVERPAID to get because she wanted a very specific color.

I opened the door to my car and threw up under the Toys R Us sign, which was now turned off. Leading me to believe there was an employee lurking somewhere. And I was entirely prepared to bribe this magic employee with everything in my checking account to let me in to buy a Furby.

A glimmer of hope sprang forth as the puke came out- my brain realizing the lights clicked off means SOMEONE IS THERE but not reaching my stomach in time, which was convinced that after months of shopping online (so as not to setback my recovery) and planning and planning (so as not to overdo it and setback my recovery) I had failed to orchestrate the perfect Christmas for my kids.

Now understand this about my kids and read this with every bit of heart I am going to tell you with: they do not deserve an ounce of whatever God or Goddess I pissed off to turn my life into this series of now comical and always tragic events. The karma or payback or whatever it is that is messing with Aaron and I can not and WILL NOT be bequeathed unto them.

They are too kind. They are too good. They have been through too, too much for small kids.

I would shake hands with the devil himself to ensure they never have to endure another day of the hell chronic illness and hospitals and treatment and surgeries have given me. Sign me up. Send over my soul.

When I realized that toy was missing something in me cracked. And it was not pretty. Life can fuck with me but it will not fuck with my kids. Sure they will have their own experiences that will be successes and failures but it will sure as hell NOT be tied to this life I juggle so they don’t even see the cotton ball and bandage when they walk in the door from school and I have had treatment. I won’t allow it.

Of course there was no employee magically turning on and off lights at the toy store, and I then spent the next 20 minutes driving in a circle around our town crying more but plotting how to GIVE HER that #1 Santa gift without a shred of disappointment.

After a few harebrained ideas I came home, puffy eyed, with a plan where she gets to pick out the color of her toy via her Uncle and Aunt’s gift card – who live on an extremely remote island and can’t possibly find the very rare one she wants – the very moment the stores open. I changed the gift card to read ‘FOR YOUR FURBY’ and shot an email off to my brother and sister-in-law to warn them and then tried like hell to let it go. I had to.

This had to work and it would work because as my son keeps reminding me, ‘Nothing is perfect, ever…and that is a good thing.’

I probably sound insane as you read this. Putting so much stock in a gift from Santa. Wanting everything to be just right when I know it never is. But understand chronic illness is a lifetime of hoping you are doing enough for those you love despite your shortcomings. What I wouldn’t have given to be one of those Moms or Dads who can just go from store to store to store until you find just what you needed on your list and then off you go to another for that other thing.

I’m lucky if I can handle two stores in one day and when I do, don’t expect dinner to be cooked or laundry done or dishes cleaned. There will be take-out and me sniffing shirts before school hoping for a clean pile while nursing swollen ankles and bruises from toes to knee because I dared manage to get groceries and medication on the same day.

Don’t feel sorry for me though, that’s also not the point of this post. This is my life and I am very happy to be LIVING it…I’m throwing this all down in words because I realized that Lupus or no Lupus I wasn’t the only parent or sibling or partner or what not frantic over something this holiday season, knowing FULL WELL we need not be.

Which I could tell was on the tip of both my husband and my father’s tongues as I left the house Monday night but neither dare speak or try and stop me. I was in that non-rational, can not be talked to or reasoned with, get the hell out of my way I will throw a brick through a window and jump through cut glass and sell my body to come home with this fucking toy mode. Know that mode? Been there? Maybe not over a toy but maybe something else? Yeah…you know what I mean.

Of course they were right. Of course I have the most optimistic, sensitive, and sweetest children on the planet who agonized over what they should give each other as siblings so very much it took my son an hour and 27 minutes to pick out three charms. Three charms that he knew his sister would love and that meant something to both of them. Yes, my son spent that long to make sure his sister would be happy and to show his love in charm form to her. And my sweet daughter? Months ago bought her brother a meteorite from a museum she couldn’t afford and has been giving me $1 per week for months to pay me back. Because ‘Mom he just has to have this, it came from space and I can be the one to give him something from space.’

Both frequently checked on the gifts they bought to make sure everything was still in order and when they finally unveiled…well….

Our children just gave each other the gifts they bought for one another. I'm trying not to sob #mykidsrock

…and here I was agonizing and making myself sick over a gift my daughter would receive, just not on the day she expected. She bought the gift card tale with gusto and can’t wait to get the exact one she wants. Her Uncle and Aunt are now heroes (you are welcome) and I am reminded once again that YES life has changed, but life is NOT over. LIFE is not DONE with me and I’m going to still screw up and kick ass and even learn that no matter how much I plan, SHIT STILL HAPPENS. And MOST of it has NOTHING to do with LUPUS! Imagine the hell out of that?!

I need to stop putting so much pressure on myself to ‘make up’ for these imaginary things I swear my kids and husband go through because I am getting an IV all day or because all the pills on the counter scare them. This is now LIFE. For better or for worse- and the guilt needs to leave as do the constant coddling and freak outs because I can’t make that field trip or I can’t volunteer in class or I can’t have that playdate at our house because I’m just too tired today.

It ends now. Before I take what is wonderful about everything that has happened and the bonds growing tighter and the love growing even stronger and I ruin it with trying to make everything ‘perfect.’

Because nothing is perfect. And that really is a good thing. It means we just need to be us, and I need not try to make things happier or more active or anything other than what we can handle and what we WANT to handle and do.

And you know what? I employed that outlook all day and had the best damn Christmas with my family. It was us. It was casual and laid back and odd and silly and surprising and filled with the one thing I know we get right every single time: love. That part has not changed and that part requires me to only be me. Filled with heart for this little family of mine that teaches me more and more every day about what it means to love and what it means to truly be a family.

Happy Holidays to you all. May you love hard and enjoy the pure magic in every moment of life. It won’t ever, ever be perfect, but it sure as hell will be real.

Holidays: Hurting, Helping, and Holding Everyone Close

I am feeling guilty enjoying the many traditions we partake in here around the holidays. ‘Torn,’ maybe is a better word than ‘guilt.’

Tonight our family filled out our ‘wishes’ for our wish ornament tradition and all I could think of were the families whose wishes won’t come true this year, no matter how hard any of us try. There is just no bringing back those we’ve lost. I’ve tried. I’ve tried since I was a child and my grandmother died. If there were a way, I would have found it by now…just out of sheer love and pain.

This year's wishes have been meticulously written and rolled inside - ready for the tree!

For those who are unaware, we are friends with Victoria & Alexis Haller, Aunt and Uncle to six-year old Noah Pozner. Noah was killed at Sandy Hook Elementary School that fateful Friday and I want to make sure you know how to help.

There is a page set up so you can donate directly to Noah’s four surviving siblings. There is also a nationwide effort to help all of the children when they return to school after the break by simply hanging snowflakes around their new place of learning. Making them feel welcome and safe.

I can’t describe what it even slightly feels like to know someone close to this tragedy. Just watching a friend go through this from afar pales so greatly in comparison to what the family is experiencing, that a comparison can not be made. What I can say, is it has made me even more of a believer in the power of GOOD in our community.

Sometimes when it comes to blogging and tweeting and pinning and facebooking we only seem to have two modes: bitch and rally. Right now, we need every bit of rally we can muster. This is one of our nation’s most horrific tragedies, and one of our own has been touched.

I keep trying to make some sort of logical leap in my mind, about how every holiday season we all get a bit down and we all, also, feel that love and magic when we hold each other close. This year…this year is just so much different.

My family is a bit more screwed up than usual. My heart is a bit more torn than it was before children were murdered and I had to explain to my own children things I never want to explain again. My health has this awesome overall outlook but the waiting is unlike any torture on earth…provided the doctor is right.

So much feels broken and I’m the type of person destined to FIX. Control. Fix. Control. Fix.

I’ve let go so much of the control, and am slowly beginning to take back what I can handle…but I still can’t fix. I can’t fix other people, they have to fix themselves. I can’t fix other relationships, they have to fix themselves. I have to let my children become the amazing young adults they are on their way to being, without my overbearing influence. And I certainly can not fix everything our country needs in order to stop another tragedy.

I feel like I tried to take on health care with my own health problems. The election with my gender and my convictions and my determination to see what we all started be FINISHED.

Fix. Control. Fix. Control. From the small to the HUGE it is just what I do. It is just WHO I AM. 

Or is it who I was? It’s as though everything was taken out of my hands, I was forced to take a deep breath, and then just sit and watch.

It’s maddening. And fills me with fear and pride.

I’m doing my best to put my health at the top of the list so I can better care for those around me when they need it and when it’s required. Also because I’ve finally realized the healthier I am, the more I can take back of my life. The real life. Not this half-life. The life where I can be on my husband’s arm at a party, or take care of him after surgery.

Where I can take my children to a mall or a store without a cane or a cart for help walking…the life where I don’t have to space out my pain killers and pills just to be able to drive carpool to or from school. The life where I can even volunteer inside the classroom without worry of a germ or bacteria or infection that will land me in the hospital.

The life I want more than anything else. The life that seems so much more simple after December 14th, because I am even more grateful for what I DO have.

I didn’t think that was even possible. I had become so accustomed to being thankful for surviving what I had been through these past two years that adding to the thanks and gratefulness seemed over-the-top.

But when you can feel your heart being ripped from your chest for a friend who last helped hold your hair while you threw up at a strange karaoke bar in Silicon Valley, you know there is always something more to be grateful for. 

So I’m asking you to rally. No, I’m telling you to rally.

Keep any of the blog drama to yourself. Now is not the time.

Keep any of the usual behind the scenes status updates ‘accidentally’ gone public deleted. Keep the links hidden.

Suck it up and act like adults about every single matter concerning this. Do not second guess. Do not wonder out loud on twitter.

Be respectful. Be rational. And overall, rally like that blogging community I KNOW you can be when one of us needs it most.

There will be time for all of us to fight about gun control and politics – you can COUNT on that. I’m not asking you keep things without opinion. I’m asking you to rally. And to rally hard. 

Hold those you love close this holiday season. Help in any way you can.

For our @VDog. For her family. And, most of all, for Noah.

 *In the spirit of this post, comments are off.